Cookies on this website

We use cookies to ensure that we give you the best experience on our website. If you click 'Accept all cookies' we'll assume that you are happy to receive all cookies and you won't see this message again. If you click 'Reject all non-essential cookies' only necessary cookies providing core functionality such as security, network management, and accessibility will be enabled. Click 'Find out more' for information on how to change your cookie settings.

REACH Publications and Resources

Journal papers

  • Zakayo SM, Njeru RW, Sanga G, et al. Vulnerability and agency across treatment-seeking journeys for acutely ill children: how family members navigate complex healthcare before, during and after hospitalisation in a rural Kenyan setting. Int J Equity Health. 2020;19(1):136. Published 2020, Aug 10. https://dx.doi.org/10.1186%2Fs12939-020-01252-x.
  • Khirikoekkong N, Jatupornpimol N, Nosten S, Asarath S, Hanboonkunupakarn B, McGready R, Nosten F, Roest J, Parker M, Kelley M, Cheah PY. Research ethics in context: understanding the vulnerabilities, agency and resourcefulness of research participants living along the Thai–Myanmar border, International Health, Volume 12, Issue 6, November 2020, Pages 551–559, https://doi.org/10.1093/inthealth/ihaa052.
  • Nkosi B, Seeley J, Chimbindi N, Zuma T, Kelley M, Shahmanesh M, Managing ancillary care in resource-constrained settings: Dilemmas faced by frontline HIV prevention researchers in a rural area in South Africa, International Health, Volume 12, Issue 6, November 2020, Pages 543–550, https://doi.org/10.1093/inthealth/ihaa045
  • Muraya, K., Ogutu, M., Mwadhi, M. et al. Applying a gender lens to understand pathways through care for acutely ill young children in Kenyan urban informal settlements. Int J Equity Health 20, 17 (2021). https://doi.org/10.1186/s12939-020-01349-3
  • Uddin, M.F., Molyneux, S., Muraya, K. et al. Gender-related influences on adherence to advice and treatment-seeking guidance for infants and young children post-hospital discharge in Bangladesh. Int J Equity Health 20, 64 (2021). https://doi.org/10.1186/s12939-021-01404-7
  • Zakayo SM, Kimani MN, Sanga G, et al. Vulnerability, Agency, and the Research Encounter: Family Members’ Experiences and Perceptions of Participating in an Observational Clinical Study in Kenya. Journal of Empirical Research on Human Research Ethics. March 2021. https://doi.org/10.1177/15562646211005304
  • Molyneux SSukhtankar PThitiri J, et al. Model for developing context-sensitive responses to vulnerability in research: managing ethical dilemmas faced by frontline research staff in Kenya. BMJ Global Health 2021;6: e004937.
  • Nkosi B, Seeley J, Chimbindi N, Zuma T, Kelley M, Shahmanesh M. Putting research ethics in context: Rethinking vulnerability and agency within a research ethics case study on HIV prevention for young girls in South Africa, SSM - Qualitative Research in Health, Volume 2, April 2022, https://doi.org/10.1016/j.ssmqr.2022.100081.

Online resources & Galleries

Blogs

Recommended Journal Papers

  • Thoits, Peggy A. "Stress, coping, and social support processes: Where are we? What next?" Journal of health and social behavior (1995): 53-79.
  • Thompson, Suzanne C., and Shirlynn Spacapan. "Perceptions of control in vulnerable populations." Journal of Social Issues 47, no. 4 (1991): 1-21.
  • Vig, Susan, Susan Chinitz, and Lisa Shulman. "Young children in foster care: Multiple vulnerabilities and complex service needs." Infants & Young Children 18, no. 2 (2005): 147- 160.
  • Wang, Caroline C. "Photovoice: A participatory action research strategy applied to women's health." Journal of Women's Health 8, no. 2 (1999): 185-192. World Medical Association.

 

Recommended Reading

Books

  • Goodin, Robert E. Protecting the vulnerable: A re-analysis of our social responsibilities. University of Chicago Press, 1985.
  • MacKenzie C, Rogers W, Dodds S, eds. Vulnerability: New Essays in Ethics and Feminist Philosophy. Oxford University Press, 2014

Articles/Chapters

  • Kelley M, James C, Kraft SA, Korngiebel D, Wijangco I, Rosenthal E, et al. Patient perspectives on the learning health system: the importance of trust and shared decision making. American Journal of Bioethics 15, no.6 (2015): 4-17.
  • Kerber, KJ, de Graft-Johnson, JE, Bhutta Z, Okong P, Starrs A, Lawn JE. Continuum of care for maternal, newborn, and child health: from slogan to service delivery. The Lancet 370, no.  9595  (2007):1358-1369.
  • Kipnis, K. “Seven Vulnerabilities in the Pediatric Research Subject.” Theoretical Medicine and Bioethics 24, no.2 (2003): 107-120.  
  • Kipnis, K. “Vulnerability in Research Subjects: A Bioethical Taxonomy.” In: National Bioethics Advisory Commission [NBAC]. Ethical and Policy Issues in Research Involving Human Participants. Volume II: Commissioned Papers. Rockville, MD: National Bioethics Advisory Commission [NBAC]; 2001: G1-G13.
  • Kottow, Michael H. "The vulnerable and the susceptible." Bioethics 17, no. 5-6 (2003): 460- 471.
  • Lange, Margaret Meek, Wendy Rogers, and Susan Dodds. "Vulnerability in research ethics: away forward." Bioethics 27, no. 6 (2013): 333-340.
  • Lee SS, Kelley M, Cho M, Kraft SA, James C, Constantine M, et al. Adrift in the gray zone: IRB perspectives on research in the learning health system. AJOB Empirical Bioeth. In press, 2015.
  • Levine, C, Ruth F, Christine G, Hammerschmidt D, Eckenwiler L, and Sugarman J. "The limitations of “vulnerability” as a protection for human research participants." The American Journal of Bioethics 4, no. 3 (2004): 44-49.
  • Lotz, Mianna. “Vulnerability and Resilience: a Critical Nexus.” Theoretical Medicine and Bioethics 37, no.1 (2016):45-59.
  • Luna F. Elucidating the Concept of Vulnerabilitiy: Layers not Labels. International Journal of Feminist Approaches to Bioethics 2, no.1 (2009):121-139.
  • Luna, F, Vanderpoel, S. “Not the Usual Suspects: Addressing Layers of Vulnerability” Bioethics 27, no.6 (2013): 325-332.
  • Lyerly AD, Little MO, Faden R. The second wave: Toward responsible inclusion of pregnant women in research. International Journal of Feminist Approaches to Bioethics 2008;1:5-22.
  • Matthews, S, Tobin, B. “Human Vulnerability in Medical Contexts.” Theoretical Medicine and Bioethics 37, no.1 (2016): 1-7.
  • Macklin, R. “Bioethics, Vulnerability, and Protection.” Bioethics 17, no.5-6  (2003): 472-486.
  • Martin, A.K. “Resolving the Conflict: Clarifying ‘Vulnerability’ in Health Care Ethics.” Kennedy Institute of Ethics Journal 24, no.1 (2014): 51-72.
  • Mastroianni AC FR, Federman D. Women and Health Research: Ethical and Legal Issues of Including Women in Clinical Studies. IOM 1994. McNeil, GF (2015) A Failed Trial in Africa Raises Questions about How to Test HIV Drugs. New York Times. New York, The New York Times Company.
  • Mayes, C., Blakely, B., Kerridge, I., Komesaroff, P., Olver, I., Lipworth, W. “On the Fragility of Medical Virtue in a Neoliberal Context: The Case of Commercial Conflicts of Interest in Reproductive Medicine.” Theoretical Medicine and Bioethics 37, no.1 (2016): 97-111.
  • McConnell, D. “Narrative Self-Constitution and Vulnerability to Co-Authoring.” Theoretical Medicine and Bioethics 37, no.1 (2016): 29-43.
  • Nickel, P.J. “Vulnerable Populations in Research: The Case of the Seriously Ill.” Theoretical Medicine and Bioethics 27, no.3 (2006): 245-264.
  • Nyambedha, Erick Otieno. "Ethical dilemmas of social science research on AIDS and orphanhood in Western Kenya." Social Science & Medicine 67, no. 5 (2008): 771-779.
  • Oakley, J. “Diagnosing True Virtue? Remote Scenarios, Warranted Virtue Attributions, and Virtuous Medical Practice.” Theoretical Medicine and Bioethics 37, no.1 (2016): 85-96.
  • Quilter, JG. “The New Enhancement Technologies and the Place of Vulnerability in our Lives.” Theoretical Medicine and Bioethics 37, no.1 (2016): 9-27.
  • Rendtorff, J.D. “Basic Ethical Principles in European Bioethics and Biolaw: Autonomy, Dignity, Integrity, and Vulnerability – Towards a Foundation of Bioethics and Biolaw.” Medicine, Health Care and Philosophy 5, no.3 (2002):235-244.
  • Rogers, W.A., Walker, M.J. “Fragility, Uncertainty, and Healthcare.” Theoretical Medicine and Bioethics 37, no.1 (2016): 71-83.
  • Rogers, W., Mackenzie, C., Dodds, S. “Why Bioethics Needs A Concept of Vulnerability.” International Journal of Feminist Approaches to Bioethics 5, no.2 (2012): 11-38.
  • Schroeder, D., Genefas, E. “Vulnerability: Too Vague and Too Broad.” Cambridge Quarterly of Healthcare Ethics 18, no. 2 (2009):113-121.
  • Schuklenk, U. “Protecting the Vulnerable: Testing Times for Clinical Research Ethics.” Social Science and Medicine 51, no.6 (2000): 969-977.
  • Solbakk, J.H. “Vulnerability: A Futile or Useful Principle in Healthcare Ethics?” In Chadwick, R., Have, H.T., and Meslin, E.M. (Eds.) The SAGE Handbook of Health Care Ethics: Core and Emerging Issues, SAGE, 2011: 228-238.
  • Stone, T.H. “Currents in Contemporary Ethics.” Journal of Law, Medicine, and Ethics. 31, no.1 (2003):149- 153.
  • Tavaglione, N., Martin, A.K., Mezger, N., Durieux-Paillard, S., Francois, A., Jackson, Y., and Hurst, S.A. “Fleshing out Vulnerability.” Bioethics 29, no.2 (2015): 98-107.

 

Recommended Guidelines

  • Nuffield Council on Bioethics. The ethics of research related to health care in developing countries. London: Nuffield Council on Bioethics, 2002.
  • Council for International Organizations of Medical Sciences (CIOMS) in collaboration with the World Health Organization (WHO). 2016. International Ethical Guidelines for Health-Related Research involving Humans. Geneva, Switzerland.  Available for download at: http://www.cioms.ch/
  • National Commission for the Protection of Human Subjects, The Belmont Report. (1979). The report to the Secretary of the Department of Health, Education and Welfare.

On this page

Resized REACH logo.