Governance Challenges in Population-level Research: Can Engaging Publics Resolve Ethics and Legitimacy Problems?
World Congress of Bioethics 2020: Symposium
Tuesday, 23 June
9-10am BST (8-9am UTC) or
5-6pm BST (4-5pm UTC)
Following on from the symposium presentation at the IAB by Matt McCoy, Sonja Erikainen, Leah Rand and Annie Sorbie, we would like to invite you to join us on Tuesday 23rd June, on Zoom, to discuss issues in governance and public involvement and share your experiences.
We are interested to hear about your experiences of, research on or engagements with large scale/population level biobanks, databases, or repositories – in the context of public involvement. We are also interested to hear, in particular, about the ethical and/or governance challenges that you’ve faced and how they might be rectified – how and why different methods of public involvement are justified and appropriate in different settings. Finally, we are interested to hear your thoughts about how public involvement can and should be embedded within governance in the context of different legal, regulatory and policy environments.
Joining details:
https://us02web.zoom.us/j/9592256455?pwd=eERIeVkwOEEyUGRVSGlRWmZ6Zkd0UT09
Meeting ID: 959 225 6455 Password: Cbss
Mark Sheehan (University of Oxford) and Sarah Chan (University of Edinburgh) will lead the discussions, and will be joined by:
Michael Dunn, University of Oxford
Sonja Erikainen, University of Edinburgh
Phoebe Friesen, McGill University
Karin Jongsma, University Medical Center, Utrecht
Carolyn Neuhaus, The Hastings Centre
Matthew McCoy, University of Pennsylvania
Leah Rand, Harvard Medical School and PORTAL, Brigham and Women's Hospital
Annie Sorbie, University of Edinburgh
