Dr Adeline Perrot
Contact information
Research groups
Dr Adeline Perrot
BA, MSc , PhD
Research Fellow
Adeline's approach is at the intersection between medical sociology, social policy and bioethics. Her research focuses on the social, ethical and legal issues raised by healthcare practices and biomedical technologies, particularly in the fields of genetics and genomics (genome-wide NIPT, prenatal exome sequencing, genetic testing in children and adults). She has studied Sociology at School of Advanced Studies in the Social Sciences (EHESS, Paris) and is trained in qualitative research methods.
Current project:
Adeline is currently working in a team with Ruth Horn on a research project to explore the social, ethical and legal issues raised by the implementation of non-invasive prenatal testing (NIPT) in routine clinical care in different socio-cultural and political contexts (England, France and Germany).
Past projects:
- She has held a research grant (Principal Investigator) for the Adosoins project funded by the Foundation of France: ‘Involvement of adolescents living with Duchenne muscular dystrophy in their own health and care’.
- She has also been involved in collective research projects funded by the DataSanté programme and the Rare Disease Foundation.
Publications:
Adeline has published on the ethics of prenatal genetics/genomics and the questions of child-adult relationships, children’s participation in health care and the experience of neuromuscular disorders in children and adults in several major journals (such as EJHG, JME, PLOS One, JGC, Ethnologie française, Sciences Sociales et Santé, Genèses, etc.).
Other:
She is currently a member of the British Society for Genetic Medicine (BSGM) Ethics and Policy Committee.
Recent publications
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Supporting patient decision-making in non-invasive prenatal testing: a comparative study of professional values and practices in England and France.
Bowman-Smart H. et al, (2024), BMC Med Ethics, 25
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Women's preferences for NIPT as a first-line test in England and France: Challenges for genetic counseling practices
Horn R. et al, (2023), Journal of Genetic Counseling
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Preserving women's reproductive autonomy while promoting the rights of people with disabilities?: the case of Heidi Crowter and Maire Lea-Wilson in the light of NIPT debates in England, France and Germany.
Perrot A. and Horn R., (2023), J Med Ethics, 49, 471 - 473
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When young patients living with Duchenne muscular dystrophy negotiate care with adults: personalization and resistance practices
Perrot A., (2022), Anthropologie & Santé
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Le(s) paysage(s) éthique(s) du dépistage prénatal non invasif en Angleterre, en France et en Allemagne : résultats d’une analyse documentaire comparative
Horn R. and Perrot A., (2022), Cahiers Droit, Sciences & Technologies