Publications

Public engagement professionals: Exploring ethical tensions in communication, engagement and co-creation.

Wilkinson C. et al, (2026), Public Underst Sci

Grandmother Caregiving in Rural Skip-generation Households in Cambodia: An Intersectional Analysis of Multiple Marginalisation for Older Women’s Health

Schneiders ML. et al, (2026), Wellcome Open Research, 11, 246 - 246

Optimising rapid prenatal exome sequencing in the NHS genomic medicine service: the EXPRESS Synopsis.

Hill M. et al, (2026), Health Soc Care Deliv Res, 14, 1 - 40

Adolescent consent and Generation Alpha: bridging policy, practice and empirical evidence in healthcare.

Fazel M. et al, (2025), Br J Psychiatry, 1 - 6

Adversarial cooperation: some reflections prompted by commentaries.

Parker MJ., (2025), J Med Ethics, 52, 24 - 25

Bioethics and the value of disagreement.

Parker MJ., (2025), J Med Ethics, 52, 7 - 13

How should health researchers advance health equity?

Cheah PY. and Parker M., (2025), Trends Microbiol, 33, 1260 - 1263

Moral craft: engaging with value pluralism in healthcare decision-making.

Parker M., (2025), Monash Bioeth Rev, 43, 5 - 14

Germline genomic testing to assess the suitability of stem cell donors in the treatment of haematological malignancy: clinical ethics commentary.

Carley H. et al, (2025), J Med Ethics

Patient journeys for neglected tropical diseases in rural sub-Saharan Africa: a scoping review

Frischer S. et al, (2025), Infectious Diseases of Poverty

The Problem (and the Value) of Radical Moral Disagreement

Wilkinson D. et al, (2025), Wellcome Open Research

Life from death: ethical implications of uterus transplantation from deceased donors in global health.

Suwalowska H. et al, (2025), BMJ Glob Health, 10

Determining a role for Patient and Public Involvement and Engagement (PPIE) in genomic data governance for cancer care.

Sahan K. et al, (2025), Eur J Hum Genet

The value of large-scale programmes in human genomics.

Horn R. et al, (2025), Eur J Hum Genet, 33, 563 - 569

The Rare Therapies Launchpad: a pilot program for individualized medicines in the UK.

O'Connor DJ. et al, (2025), Nat Med, 31, 1379 - 1380

Author Correction: Call for a fairer approach to authorship in publishing biomedical research.

Cheah PY. and Parker M., (2025), Commun Med (Lond), 5

Call for a fairer approach to authorship in publishing biomedical research.

Cheah PY. and Parker M., (2025), Commun Med (Lond), 5

Equity and timeliness as factors in the effectiveness of an ethical prenatal sequencing service: reflections from parents and professionals.

Peter M. et al, (2025), Eur J Hum Genet, 33, 360 - 367

Artificial intelligence for modelling infectious disease epidemics.

Kraemer MUG. et al, (2025), Nature, 638, 623 - 635

“Looking at the Big Picture”: A Qualitative Study of Ethics in Science Communication and Engagement

Wilkinson C. et al, (2025), Science Communication

The Problem (and the Value) of Radical Moral Disagreement.

Lyreskog D. et al, (2025), Wellcome open research, 10

Conceptualising care pathways for neglected tropical diseases in sub-Saharan Africa: A systematic scoping review

Frischer SR. et al, (2024)

Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues.

Sahan K. et al, (2024), J Med Ethics, 50, 517 - 522

Ethical implications of disparities in translation genomic medicine: from research to practice.

Suleman M. et al, (2024), J Med Ethics, 50, 435 - 436

Ethical implications of digital gaming interventions for mental health: Systematic review and critical appraisal

Pavarini G. et al, (2024)

Ethical and social implications of public–private partnerships in the context of genomic/big health data collection

Horn R., (2024), European Journal of Human Genetics

Healthcare resource allocation decisions and non-emergency treatments in the aftermath of Covid-19 pandemic. How should children with chronic illness feature in prioritisation processes?

Lignou S. et al, (2024)

'Something that helped the whole picture': Experiences of parents offered rapid prenatal exome sequencing in routine clinical care in the English National Health Service.

McInnes-Dean H. et al, (2024), Prenat Diagn, 44, 465 - 479

Assembling a global health image: Ethical and pragmatic tensions through the lenses of photographers

Suwalowska H., (2024), PLOS Global Public Health

Considerations for legal, ethical, and effective practice in dementia research.

David MCB. et al, (2024), Brain Commun, 6

Large-scale evaluation of outcomes after a genetic diagnosis in children with severe developmental disorders.

Copeland H. et al, (2024), Genet Med Open, 2

Global health photography behind the façade of empowerment and decolonisation.

Alenichev A. et al, (2024), Glob Public Health, 19

Afterword

Bull S. and Parker M., (2024), 193 - 201

Introduction: Research Ethics and Health Policy in Epidemics and Pandemics

Parker M. et al, (2024), 1 - 22

The challenges and potential solutions of achieving meaningful consent amongst research participants in northern Thailand: a qualitative study.

Greer RC. et al, (2023), BMC Med Ethics, 24

Getting rights right: Implementing 'Martha's Rule'

GRAHAM M. et al, (2023), Journal of Medical Ethics

Ethical issues in Nipah virus control and research: addressing a neglected disease

Johnson T. et al, (2023), Journal of Medical Ethics

"The Nobodies": unidentified dead bodies-a global health crisis requiring urgent attention.

Suwalowska H. et al, (2023), Lancet Glob Health, 11, e1691 - e1693

The importance of getting the ethics right in a pandemic treaty.

Schaefer GO. et al, (2023), Lancet Infect Dis, 23, e489 - e496

Public health use of HIV phylogenetic data in sub-Saharan Africa: ethical issues.

Jamrozik E. et al, (2023), BMJ Glob Health, 8

Beyond translations, perspectives for researchers to consider to enhance comprehension during consent processes for health research in sub-saharan Africa: a scoping review.

Busisiwe N. et al, (2023), BMC Med Ethics, 24

Genomic Diagnosis of Rare Pediatric Disease in the United Kingdom and Ireland.

Wright CF. et al, (2023), N Engl J Med, 388, 1559 - 1571

Invisibility in global health: A case for disturbing bioethical frameworks

Alenichev A. et al, (2023), Wellcome Open Research, 8, 191 - 191

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.

Horn R. et al, (2023), Eur J Hum Genet, 31, 142 - 147

Invisibility in global health: A case for disturbing bioethical frameworks.

Alenichev A. et al, (2023)

Vulnerability and agency in research participants' daily lives and the research encounter: A qualitative case study of participants taking part in scrub typhus research in northern Thailand.

Greer RC. et al, (2023), PLoS One, 18

Healthcare resource allocation decisions and non-emergency treatments in the aftermath of Covid-19 pandemic. How should children with chronic illness feature in prioritisation processes?

Lignou S. et al, (2023), Wellcome Open Res, 8

Navigating uncertainties of death: Minimally Invasive Autopsy Technology in global health.

Suwalowska H. et al, (2023), Glob Public Health, 18

Culturally responsive research ethics: How the socio-ethical norms of Arr-nar/Kreng-jai inform research participation at the Thai-Myanmar border.

Khirikoekkong N. et al, (2023), PLOS Glob Public Health, 3

Ethics and Tropical Diseases: Some Global Considerations

Jamrozik E. et al, (2023), 64 - 69

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