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Publications

Of Straws, Camels, Research Regulation, and IRBs.

Friesen P. et al, (2019), Ther Innov Regul Sci, 53, 526 - 534

The ethics of sequencing infectious disease pathogens for clinical and public health.

Johnson SB. and Parker M., (2019), Nat Rev Genet, 20, 313 - 315

How should assent to research be sought in low income settings? Perspectives from parents and children in Southern Malawi.

Mangochi H. et al, (2019), BMC Med Ethics, 20

Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales.

Shepherd V. et al, (2019), Trials, 20, 233 - 233

Patient and public involvement: Two sides of the same coin or different coins altogether?

McCoy MS. et al, (2019), Bioethics

Lay Perspectives on Receiving Different Types of Genomic Secondary Findings: a Qualitative Vignette Study.

Vornanen M. et al, (2019), J Genet Couns, 28, 343 - 354

Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

Mweemba O. et al, (2019), Global Bioethics, 1 - 16

More Harm Than Good: Neurotechnological Thought Apprehension in Forensic Psychiatry.

Graham M. and Friesen P., (2019), AJOB neuroscience, 10, 17 - 19

Negotiating jurisdictional boundaries in response to new genetic possibilities in breast cancer care: The creation of an 'oncogenetic taskscape'.

Wright S. et al, (2019), Soc Sci Med, 225, 26 - 33

Prenatal exome sequencing analysis in fetal structural anomalies detected by ultrasonography (PAGE): a cohort study.

Lord J. et al, (2019), Lancet, 393, 747 - 757

At the moral margins of the doctor-patient relationship.

Dunn M., (2019), Journal of medical ethics, 45, 149 - 150

Structural Transformation to Attain Responsible BIOSciences (STARBIOS2): Protocol for a Horizon 2020 Funded European Multicenter Project to Promote Responsible Research and Innovation

BUCHAN ALASTAIR., (2019), JMIR Research Protocols

La France et la Grande-Bretagne à l’ère de la médecine génomique

Horn R., (2019), médecine/sciences, 35, 163 - 168

Moving into the mainstream: healthcare professionals' views of implementing treatment focussed genetic testing in breast cancer care.

Hallowell N. et al, (2019), Familial cancer

Philosophical Bioethics in the Policy Arena

MORTIMER RE. et al, (2019), American Journal of Bioethics

Health-emergency disaster risk management and research ethics.

Chan EYY. et al, (2019), Lancet, 393, 112 - 113

The NeuroDev Study: Phenotypic and Genetic Characterization of Neurodevelopmental Disorders in Kenya and South Africa

(2019), Neuron

The shared decision making of older adults in healthcare

Pusey E. et al, (2019), Working with Older People

Evolution of a programme to engage school students with health research and science in Kenya.

Davies A. et al, (2019), Wellcome Open Res, 4

Lessons from PrEP: A Qualitative Study Investigating How Clinical and Policy Experts Weigh Ethics and Evidence When Evaluating Preventive Medications for Use in Pregnant and Breastfeeding Women

Beima-Sofie KM. et al, (2018), AIDS and Behavior

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