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Publications

Ethical considerations and call to action for achieving equitable access to human milk for vulnerable infants

PARKER M. and KELLEY M., (2019), Lancet Global Health

Passive data collection and use in healthcare: A systematic review of ethical issues

Maher NA. et al, (2019), International Journal of Medical Informatics, 129, 242 - 247

Why the pseudo matters to global health

Kingori P. and Gerrets R., (2019), Critical Public Health, 29, 379 - 389

The masking and making of fieldworkers and data in postcolonial Global Health research contexts

Kingori P. and Gerrets R., (2019), Critical Public Health, 29, 494 - 507

Protection by exclusion? the (lack of) inclusion of adults who lack capacity to consent to research in clinical trials in the UK

Shepherd V. et al, (2019), Trials, 20

Prenatal exome sequencing analysis in fetal structural anomalies detected by ultrasonography (PAGE): A cohort study

Lord J. et al, (2019), Obstetrical and Gynecological Survey, 74, 394 - 396

Of Straws, Camels, Research Regulation, and IRBs.

Friesen P. et al, (2019), Ther Innov Regul Sci, 53, 526 - 534

Should the Decisions of Institutional Review Boards Be Consistent?

Friesen P. et al, (2019), Ethics Hum Res, 41, 2 - 14

The ethics of sequencing infectious disease pathogens for clinical and public health.

Johnson SB. and Parker M., (2019), Nat Rev Genet, 20, 313 - 315

How should assent to research be sought in low income settings? Perspectives from parents and children in Southern Malawi.

Mangochi H. et al, (2019), BMC Med Ethics, 20

Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales.

Shepherd V. et al, (2019), Trials, 20, 233 - 233

Patient and public involvement: Two sides of the same coin or different coins altogether?

McCoy MS. et al, (2019), Bioethics

Lay Perspectives on Receiving Different Types of Genomic Secondary Findings: a Qualitative Vignette Study.

Vornanen M. et al, (2019), J Genet Couns, 28, 343 - 354

Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

Mweemba O. et al, (2019), Global Bioethics, 1 - 16

More Harm Than Good: Neurotechnological Thought Apprehension in Forensic Psychiatry.

Graham M. and Friesen P., (2019), AJOB neuroscience, 10, 17 - 19

Negotiating jurisdictional boundaries in response to new genetic possibilities in breast cancer care: The creation of an 'oncogenetic taskscape'.

Wright S. et al, (2019), Soc Sci Med, 225, 26 - 33

Prenatal exome sequencing analysis in fetal structural anomalies detected by ultrasonography (PAGE): a cohort study.

Lord J. et al, (2019), Lancet, 393, 747 - 757

At the moral margins of the doctor-patient relationship.

Dunn M., (2019), Journal of medical ethics, 45, 149 - 150

Structural Transformation to Attain Responsible BIOSciences (STARBIOS2): Protocol for a Horizon 2020 Funded European Multicenter Project to Promote Responsible Research and Innovation

BUCHAN ALASTAIR., (2019), JMIR Research Protocols

La France et la Grande-Bretagne à l’ère de la médecine génomique

Horn R., (2019), médecine/sciences, 35, 163 - 168

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