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Publications

Considering the Collective in Ethical Decision-Making Concerning Non-Medical Uses of Non-Invasive Prenatal Testing

Johnson T., (2023), The American Journal of Bioethics

Use of functional magnetic resonance imaging to assess cognition and consciousness in severe Guillain-Barré syndrome.

Norton L. et al, (2023), Int J Clin Health Psychol, 23

Vulnerability and agency in research participants' daily lives and the research encounter: A qualitative case study of participants taking part in scrub typhus research in northern Thailand.

Greer RC. et al, (2023), PLoS One, 18

Germline mismatch repair (MMR) gene analyses from English NHS regional molecular genomics laboratories 1996-2020: development of a national resource of patient-level genomics laboratory records.

Loong L. et al, (2022), J Med Genet

Ethics and Drug Resistance: Collective Responsibility for Global Public Health

(2022), 5

Non-invasive prenatal testing in Germany: a unique ethical and policy landscape.

Bowman-Smart H. et al, (2022), Eur J Hum Genet

Understanding the extent and impact of secondary use of clinical research data with a focus on Low and Middle Income Countries: a cross sectional mixed methods study (REUSE) (Preprint)

Waithira N. et al, (2022)

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.

Horn R. et al, (2022), Eur J Hum Genet, 1 - 6

COVID-19 vaccine boosters for young adults: a risk benefit assessment and ethical analysis of mandate policies at universities

Bardosh K. et al, (2022), Journal of Medical Ethics

Anticipating hopes, fears and expectations towards COVID-19 vaccines: A qualitative interview study in seven European countries.

Paul KT. et al, (2022), SSM Qual Res Health, 2

Democratic research: Setting up a research commons for a qualitative, comparative, longitudinal interview study during the COVID-19 pandemic.

Zimmermann BM. et al, (2022), SSM Qual Res Health, 2

Good participatory practice for coronavirus disease 2019 (COVID-19) research: the case of a COVID-19 prevention study

Perrone C. et al, (2022), Wellcome Open Research, 6, 216 - 216

Medical ethics and the climate change emergency.

Auckland C. et al, (2022), J Med Ethics, 48, 939 - 940

The practical, ethical and legal reasons why patients should not be transferred between NHS trusts for phage therapy.

Jones JD. et al, (2022), J Patient Saf Risk Manag, 27, 263 - 267

The balancing of virtues-Muslim perspectives on palliative and end of life care: Empirical research analysing the perspectives of service users and providers.

Suleman M., (2022), Bioethics

When young patients living with Duchenne muscular dystrophy negotiate care with adults: personalization and resistance practices

Perrot A., (2022), Anthropologie & Santé

"I don't think people are ready to trust these algorithms at face value": trust and the use of machine learning algorithms in the diagnosis of rare disease.

Hallowell N. et al, (2022), BMC Med Ethics, 23

Sharing genomic data for health research: institutional trust and trustworthiness, and informed consent.

Graham M., (2022), CMAJ, 194, E1511 - E1512

Le(s) paysage(s) éthique(s) du dépistage prénatal non invasif en Angleterre, en France et en Allemagne : résultats d’une analyse documentaire comparative

Horn R. and Perrot A., (2022), Cahiers Droit, Sciences & Technologies

Ethical issues in prenatal genetic diagnosis. Guidance for clinical practice. Report of the Joint Committee on Genomics in Medicine.

Horn R. et al, (2022)

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