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Publications

Reasons for Not Participating in PCTs: The Comparative Case of Emergency Research under an Exception from Informed Consent (EFIC).

Sahan K. et al, (2023), Am J Bioeth, 23, 70 - 72

TREs are still not about trust

GRAHAM M. et al, (2023), Journal of Medical Ethics

Children with medical complexities: their distinct vulnerability in health systems’ Covid-19 response and their claims of justice in the recovery phase

LIGNOU S. and Sheehan M., (2022), Medicine Health Care and Philosophy

Resource allocation in genetic and genomic medicine.

Buchanan J. et al, (2022), Journal of community genetics, 13, 463 - 466

Trust and the Goldacre Review: why trusted research environments are not about trust.

Graham M. et al, (2022), J Med Ethics

A concentric circles view of health data relations facilitates understanding of sociotechnical challenges for learning health systems and the role of federated data networks.

Milne R. et al, (2022), Front Big Data, 5

Changes in Healthcare Provision During Covid-19 and Their Impact on Children With Chronic Illness: A Scoping Review.

Lignou S. et al, (2022), Inquiry, 59

Bans, Taxes or Product Placement? Applying the Liberal Perfectionist Proviso to Public Health Food Policy.

Thomas O. et al, (2021), Am J Bioeth, 21, 51 - 53

Transformative disciplinary learning in history and social studies: Lessons from a high autonomy curriculum in New Zealand

Wood BE. and Sheehan M., (2021), Curriculum Journal, 32, 495 - 509

Measuring the impact of participatory research in psychiatry: How the search for epistemic justifications obscures ethical considerations.

Friesen P. et al, (2021), Health Expect, 24 Suppl 1, 54 - 61

Ethics review of big data research: What should stay and what should be reformed?

Ferretti A. et al, (2021), BMC Med Ethics, 22

The ethics of grandfather clauses in healthcare resource allocation.

Wester G. et al, (2021), Bioethics, 35, 151 - 160

Development of a decision support intervention for family members of adults who lack capacity to consent to trials.

Shepherd V. et al, (2021), BMC Med Inform Decis Mak, 21

'There's more to life than money and health': Family caregivers' views on the role of Power of Attorney in proxy decisions about research participation for people living with dementia.

Shepherd V. et al, (2021), Dementia (London), 20, 308 - 325

Decisions on Innovation or Research for Devastating Disease

Andreae MH. et al, (2021), American Journal of Bioethics, 21, 28 - 31

Ethical Issues in Consent for the Re-use of Data in Health Data Platforms

MCKEOWN A. et al, (2020), Science and Engineering Ethics

Tragic choices in intensive care during the COVID-19 pandemic: on fairness, consistency and community.

Newdick C. et al, (2020), J Med Ethics, 46, 646 - 651

Constructing authentic decisions: proxy decision making for research involving adults who lack capacity to consent.

Shepherd V. et al, (2020), J Med Ethics

Public involvement in the governance of population-level biomedical research: Unresolved questions and future directions

Erikainen S. et al, (2020), Journal of Medical Ethics

Trust, trustworthiness and sharing patient data for research.

Sheehan M. et al, (2020), J Med Ethics

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