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Publications

Pathogenic variants in KMT2C result in a neurodevelopmental disorder distinct from Kleefstra and Kabuki syndromes.

Rots D. et al, (2024), Am J Hum Genet

Ethical implications of disparities in translation genomic medicine: from research to practice.

Suleman M. et al, (2024), J Med Ethics, 50, 435 - 436

Ethical implications of digital gaming interventions for mental health: Systematic review and critical appraisal

Pavarini G. et al, (2024)

Ethical and social implications of public–private partnerships in the context of genomic/big health data collection

Horn R., (2024), European Journal of Human Genetics

'Something that helped the whole picture': Experiences of parents offered rapid prenatal exome sequencing in routine clinical care in the English National Health Service.

McInnes-Dean H. et al, (2024), Prenat Diagn, 44, 465 - 479

Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues.

Sahan K. et al, (2024), J Med Ethics

Assembling a global health image: Ethical and pragmatic tensions through the lenses of photographers

Suwalowska H., (2024), PLOS Global Public Health

A Large Language Model Approach to Educational Survey Feedback Analysis

Parker MJ. et al, (2024), International Journal of Artificial Intelligence in Education

Afterword

Bull S. and Parker M., (2024), Public Health Ethics Analysis, 193 - 201

Introduction: Research Ethics and Health Policy in Epidemics and Pandemics

Parker M. et al, (2024), Public Health Ethics Analysis, 1 - 22

The challenges and potential solutions of achieving meaningful consent amongst research participants in northern Thailand: a qualitative study.

Greer RC. et al, (2023), BMC Med Ethics, 24

Getting rights right: Implementing 'Martha's Rule'

GRAHAM M. et al, (2023), Journal of Medical Ethics

Ethical issues in Nipah virus control and research: addressing a neglected disease

Johnson T. et al, (2023), Journal of Medical Ethics

"The Nobodies": unidentified dead bodies-a global health crisis requiring urgent attention.

Suwalowska H. et al, (2023), Lancet Glob Health, 11, e1691 - e1693

The importance of getting the ethics right in a pandemic treaty.

Schaefer GO. et al, (2023), Lancet Infect Dis

Public health use of HIV phylogenetic data in sub-Saharan Africa: ethical issues.

Jamrozik E. et al, (2023), BMJ Glob Health, 8

Beyond translations, perspectives for researchers to consider to enhance comprehension during consent processes for health research in sub-saharan Africa: a scoping review.

Busisiwe N. et al, (2023), BMC Med Ethics, 24

Invisibility in global health: A case for disturbing bioethical frameworks

Alenichev A. et al, (2023), Wellcome Open Research, 8, 191 - 191

Genomic Diagnosis of Rare Pediatric Disease in the United Kingdom and Ireland

Wright CF. et al, (2023), New England Journal of Medicine

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.

Horn R. et al, (2023), Eur J Hum Genet, 31, 142 - 147

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