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Publications

"Uninformed consent" in clinical trials with cancer patients: A qualitative analysis of patients' and support persons' communication experiences and needs.

Christine B. et al, (2024), Patient Educ Couns, 122

Ethical and social implications of public–private partnerships in the context of genomic/big health data collection

Horn R., (2024), European Journal of Human Genetics

Negotiating severity behind the scenes: prenatal testing in Germany.

Nov-Klaiman T. et al, (2024), European journal of human genetics : EJHG

Supporting patient decision-making in non-invasive prenatal testing: a comparative study of professional values and practices in England and France.

Bowman-Smart H. et al, (2024), BMC Med Ethics, 25

Solidarity during the COVID-19 pandemic: evidence from a nine-country interview study in Europe.

Kieslich K. et al, (2023), Med Humanit, 49, 511 - 520

Women's preferences for NIPT as a first-line test in England and France: Challenges for genetic counseling practices

Horn R. et al, (2023), Journal of Genetic Counseling

Preserving women's reproductive autonomy while promoting the rights of people with disabilities?: the case of Heidi Crowter and Maire Lea-Wilson in the light of NIPT debates in England, France and Germany.

Perrot A. and Horn R., (2023), J Med Ethics, 49, 471 - 473

Old and new challenges regarding comparable and viable data sharing in population-scale genomic research.

Raz A. et al, (2023), Eur J Hum Genet, 31, 617 - 618

Non-invasive prenatal testing in Germany: a unique ethical and policy landscape.

Bowman-Smart H. et al, (2023), Eur J Hum Genet, 31, 562 - 567

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.

Horn R. et al, (2023), Eur J Hum Genet, 31, 142 - 147

Not putting the cart before the horse: the complex social and ethical terrain of prenatal exome sequencing.

Boardman F. and Horn R., (2023), Eur J Hum Genet, 31, 134 - 135

Democratic research: Setting up a research commons for a qualitative, comparative, longitudinal interview study during the COVID-19 pandemic.

Zimmermann BM. et al, (2022), SSM Qual Res Health, 2

Le(s) paysage(s) éthique(s) du dépistage prénatal non invasif en Angleterre, en France et en Allemagne : résultats d’une analyse documentaire comparative

Horn R. and Perrot A., (2022), Cahiers Droit, Sciences & Technologies

Ethical issues in prenatal genetic diagnosis. Guidance for clinical practice. Report of the Joint Committee on Genomics in Medicine.

Horn R. et al, (2022)

NIPT and the concerns regarding 'routinisation'.

Horn R., (2022), Eur J Hum Genet, 30, 637 - 638

Health professionals and scientists' views on genome-wide NIPT in the French public health system: Critical analysis of the ethical issues raised by prenatal genomics.

Perrot A. and Horn R., (2022), PLoS One, 17

Normative positions towards COVID-19 contact-tracing apps: findings from a large-scale qualitative study in nine European countries.

Lucivero F. et al, (2022), Crit Public Health, 32, 5 - 18

Mixed-methods evaluation of the NHS Genomic Medicine Service for paediatric rare diseases: study protocol

Lewis C. et al, (2021), NIHR Open Research, 1, 23 - 23

The ethical landscape(s) of non-invasive prenatal testing in England, France and Germany: findings from a comparative literature review

Perrot A. and Horn R., (2021), European Journal of Human Genetics

Predictive Prenatal Diagnosis for Infantile-onset Inflammatory Bowel Disease Because of Interleukin-10 Signalling Defects.

Ye Z. et al, (2021), J Pediatr Gastroenterol Nutr, 72, 276 - 281

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