Dr Ruth Horn
BA, MA, MA Res, PhD
Associate Professor in Ethics
- Research Fellow, Wellcome Centre for Ethics and the Humanities, University of Oxford
Ruth Horn is an Associate Professor at the Ethox Centre in the Nuffield Department of Population Health and a Research Fellow at the Wellcome Centre for Ethics and Humanities, University of Oxford.
She has studied Sociology in Germany (BA, University Ludwig-Maximilian, Munich) and France (MA, University Paris Diderot; MA Res and PhD, Ecole des Hautes Etudes en Sciences Sociales, Paris), and has held research fellowships from the Wellcome Trust, European Commission, the French National Health Care Insurance, and the French National Cancer League. Ruth is an associate member of the research centre SPHERE, CNRS, University Paris Diderot. She is Secretaire General of the European Association of Centre of Medical Ethics (EACME).
In 2018, Ruth and her collegue Marie Gaille (SPHERE, CNRS) launched UK-FR GENE (UK-France Genomics and Ethics Network), a platform for British and French researchers and other stakeholders to reflect on the ethical and social questions of genomic technologies and their clinical application that emerge in each national context. Its aim is to identify pressing ethical issues in each country and understand their socio-cultural and normative underpinnings. For further information please get in touch.
Currently, Ruth is country team leader of the French study 'COVID-19: Comment cela vous affecte-t-il?' which is part of a multinational project on 'Solidarity in times of pandemics', led by Professor Barbara Prainsack at the University of Vienna.
Ruth’s research focuses on ethical questions raised by medical practices and new technologies at the beginning and end of life. She has developed a comparative ethnographic approach to understand how ethical problems arise and are addressed in clinical settings where ethically sensitive, and sometimes controversial, decisions are made. Her approach, combining literature review and ethnographic research, allows the identification of country-specific, as well as shared, ethical and social problems. Understanding problems within their socio-cultural, legal and structural context generates important elements for the development of ethical practice.
End of Life
Ruth has examined dilemmas at the end of life, with a particular interest in the tensions between patient autonomy and professional duties such as protecting vulnerable persons and maintaining life. Her PhD which explored the euthanasia debate and underlying end-of-life practices in France and Germany is published in a monograph: Le droit de mourir: Choisir sa fin de vie en France et en Allemagne, Presses Universitaires de Rennes, 2013. Drawing on her doctoral work Ruth became interested in advance decisions (ADs) to refuse treatment, their implementation, and ethical and practical problems associated with these directives in England, France and Germany. Her research, funded by the European Commission and the Wellcome Trust, compared the legislation and arguments regarding ADs employed in public and professional discourses and the practices in the three countries studied. Her in-depth analyses explored ways to improve the use of ADs that are adapted to cultural variation as well as to transnational needs. More information here
Beginning of Life
Building on her earlier end-of-life work, Ruth has been using a similar methodological approach to conduct empirical research on the ethical problems faced by health professionals involved in a UK research project, which offered prenatal genomic testing (whole genome and exome sequencing) to women who have had an undiagnosed but serious anomaly identified in their pregnancy, i.e. at the beginning of life. The aim of the scientific study - the Prenatal Assessment of Genomes and Exomes (PAGE) study - was to develop better techniques to improve rates of prenatal diagnosis and Ruth’s work on this project has complemented this scientific research by informing debate at a national and international level about the practical ethical issues the wider use of such testing might generate. More information here.
Currenty, Ruth is chairing The British Society for Genetic Medicine working group on preconceptual, preimplementation and prenatal genetic testing/diagnosis.
Law, Public Debates and Professionals’ Attitudes: A Comparative Study on the Use of Advance Directives in England, France and Germany
HORN R., (2020), Contemporary European Perspectives on the Ethics of End of Life Care, 136
The right to a self-determined death as expression of the right to freedom of personal development: The German Constitutional Court takes a clear stand on assisted suicide
HORN R., (2020), Journal of Medical Ethics
Can there be wrongful life at the end of life? German courts revisit an old problem in a new context
Horn R. and Pfeifer U., (2020), Journal of Medical Ethics
La France et la Grande-Bretagne à l’ère de la médecine génomique
Horn R., (2019), médecine/sciences, 35, 163 - 168
Health professionals’ and researchers’ perspectives on prenatal whole genome and exome sequencing: ‘We can’t shut the door now, the genie’s out, we need to refine it’
HORN R. and PARKER M., (2018), PLoS ONE