Public benefit and public trust in health data research and innovation

Project aims

The aim of the project is to examine what constitutes public benefit in the context of health data use, how benefit ought to be evaluated, and how it relates to public trust.

The challenge

The use of health data held and controlled by public healthcare institutions is vital for developing new healthcare technologies, improving health outcomes across populations, and supporting data industries and innovation. Lack of public trust, however, jeopardises this potential, leading to real costs and missed opportunities. By focusing specifically on public benefit, this project moves beyond discussions about how to fix the problem of trust, to research into the underlying drivers of it.

Key Project Partner:. Prof Ruth Horn, University of Augsburg, Germany

Bullet pointers on the methods you will use to achieve your aims: conceptual analysis, normative analysis, empirical research methods, qualitative interviews, public surveys.