Professor Michael Parker
Research groups
Colleges
Websites
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Malaria Genomic Epidemiology Network (MalariaGEN)
Ethics Lead
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Global Health Bioethics Network
Co-ordinator
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Genomics England
Chair of Ethics Advisory Committee
Michael Parker
B.Ed (Hons), MA, PhD
Ethox Centre Director and Professor of Bioethics
Michael Parker is Professor of Bioethics and Director of the Ethox Centre at the University of Oxford.
He leads a programme of cross-disciplinary research focused on the identification and analysis of ethical problems presented by advances in genomics, data science, and global health. He has particular theoretical and methodological interests in moral disagreement and value pluralism.
Much of this work takes place in the context of multidisciplinary collaborations. These include: the Global Health Bioethics Network; the Oxford-Johns Hopkins Global Infectious Disease Ethics Collaboration (GLIDE); ANTITHESES: the Discovery Platform for Transformative Inclusivity in Ethics and Humanities Research; the Genethics Forum; and Oxford Ethics and Humanities.
An important strand of Michael's research is characterised by a commitment to engaging with the opportunities and challenges arising from the integration of ethics research into large-scale biomedical science and healthcare innovations.
As such, it often involves collaborative partnerships with scientists. Some examples of include: the Oxford Pandemic Sciences Institute, the Malaria Genomics Epidemiology Network, the Wellcome Africa and Asia Programmes, the Oxford Big Data Institute, UK Biobank, and the 100,000 Genomes Project.
Leadership roles
- Director of the Ethox Centre, University of Oxford (since 2004)
- Member of Senior Management Team Oxford Pandemic Sciences Institute
- Founding Co-Director (with Professor Jeffrey Kahn) of the Oxford-Johns Hopkins Global Infectious Disease Ethics Collaborative (GLIDE) (Since 2020)
- Director of the Global Health Bioethics Network together with partners at the Wellcome Africa and Asia Programmes in Kenya, Malawi, Malaysia, South Africa, Thailand, and Vietnam (since 2009)
- UK Genethics Forum. Established with Anneke Lucassen, Tara Clancy, and Angus Clarke. This is the United Kingdom’s national ethics forum for health professionals and genetics laboratory staff (since 2001)
Selected Current Advisory Board and Policy Roles
- WHO Ethics Working Group on 2019-nCoV (coronavirus) (2020 - )
- Chair of Ethics Advisory Board, Our Future Health (2021 -)
- Cancer Research UK Research Data Advisory Board (2022 - )
- Ethics Advisor to UK Biobank (2011 - )
Selected Previous Advisory Board and Policy Roles
UK Scientific Advisory Group for Emergencies (SAGE) and a number of SAGE subgroups (2020 - 22)
- Non-Executive Director, Genomics England (2013 – 22)
- Chair of Chief Medical Officer’s Ethics Advisory Group informing the establishment of the United Kingdom’s 100,000 Genomes Project (2012 – 2013)
- Chair of Nuffield Council on Bioethics Working Group on research in global health emergencies: ethical issues (2018 – 2020)
- Member of Nuffield Council on Bioethics Working Group on the collection, linking and use of data in biomedical research and health care: ethical issues (2013 – 2015)
- Member of Nuffield Council on Bioethics Working Group on the ethics of mitochondrial transfer (2011 – 2012)
- Member of Lord Warner’s Advisory Group on the future of Research Ethics Committees (2004-5) and the Academy of Medical Sciences Independent Working Party on the Regulation and Governance of Research Ethics (2010). Together, these led to major reform of the UK research ethics committee structure and the creation of the Health Research Authority
- Member of Ministerial Task Force on the Summary Care Record (2006)
- Member of the Board of Directors of the International Association of Bioethics (2001 – 2005)
Key publications
Perceptions of death, dying and the body in Vietnamese culture: A qualitative exploration from a study examining the potentials of minimally invasive tissue sampling in Vietnam
Journal article
Doan NP. et al, (2026), Ssm Qualitative Research in Health, 9
Perinatal palliative care: how to approach antenatal counselling
Journal article
Bertaud S., (2026), Archives of Disease in Childhood: Education and Practice Edition
Data reuse in global health: perspectives from actors in policy, funding and research.
Journal article
Waithira N. et al, (2026), BMJ Glob Health, 11
Linking human and planetary health: focus on environmental sustainability and health care
Journal article
Jecker NS. et al, (2026), Environmental Research Health, 4
Towards an ethics of vigilance in public health
Journal article
Webb J., (2026), JME Practical Bioethics, 2, e000074 - e000074
Biobanking knowledge and donation willingness among musculoskeletal patients in England: a multisite cross-sectional study.
Journal article
Boakye Serebour T. et al, (2026), BMJ Open, 16
The role of genomics in delivering the United Kingdom’s national action plan for confronting antimicrobial resistance 2024 to 2029
Journal article
Johnson T. et al, (2026), The Lancet Microbe
crobatics for Antibiotics: Exploring circus-based engagement on community practices surrounding antimicrobial resistance in Cambodia
Journal article
Wijntuin R. et al, (2026), Wellcome Open Research, 11, 104 - 104
Beyond Good and Bad: Rethinking Solidarity and Coercion in Public Health
Journal article
Johnson T. et al, (2026), American Journal of Bioethics
Moral universe of Muslim healthcare practitioners in the UK: balancing Islamic and secular ethics in palliative and end-of-life care.
Journal article
Doedes E. and Suleman M., (2026), J Med Ethics
The Sound of Silence: What AI Psychotherapy Chatbots Bring About While Always Chattering.
Journal article
Sedlakova J. and Trachsel M., (2026), Am J Bioeth, 26, 89 - 91
Digital Informal Care: The Use of Technology in Family Care. A Scoping Review
Journal article
Nittas V. et al, (2026), Public Health Reviews, 46
Indonesian concept of ikhtiar: implications for palliative care practice.
Journal article
Wicaksono RB. et al, (2026), J Med Ethics, 52, 135 - 136
Circus arts shine a spotlight on antimicrobial resistance in Cambodia.
Journal article
Moul V. et al, (2026), Int Health
Beyond overconfidence: Embedding curiosity and humility for ethical medical AI.
Journal article
Cajas Ordóñez SA. et al, (2026), PLOS Digit Health, 5
Engagement and justice considerations in mitigation of antimicrobial resistance.
Journal article
Cheah PY. et al, (2026), Trends Microbiol, 34, 26 - 27
The gatekeepers of global health knowledge: A systematic review of diversity in editorial boards.
Journal article
El-Gamal S. et al, (2025), Glob Public Health, 20
Bioethics and the value of disagreement.
Journal article
Parker MJ., (2025), J Med Ethics, 52, 7 - 13
dolescent consent and Generation Alpha: bridging policy, practice and empirical evidence in healthcare.
Journal article
Fazel M. et al, (2025), Br J Psychiatry, 1 - 6
dversarial cooperation: some reflections prompted by commentaries.
Journal article
Parker MJ., (2025), J Med Ethics, 52, 24 - 25
Liminal Bioethics for Liminal Statuses: A New Method for Analysing Novel Biological Entities.
Journal article
Wee M. and Singh I., (2025), Bioethics
ism genetics: perspectives, discourse, and community engagement.
Journal article
Life BE. et al, (2025), Trends Genet
Pragmatic Trial of Glucocorticoids for Community-Acquired Pneumonia.
Journal article
Lucinde RK. et al, (2025), N Engl J Med, 393, 2187 - 2197
Ethics Review of AI research: an approach to reviewing and revising existing governance structures
Journal article
KERASIDOU A. et al, (2025), Research Ethics
Being the index-case: For an ethics of reciprocity.
Journal article
Diniz D. et al, (2025), Dev World Bioeth, 25, 255 - 256
Moral craft: engaging with value pluralism in healthcare decision-making.
Journal article
Parker M., (2025), Monash Bioeth Rev, 43, 5 - 14
How should health researchers advance health equity?
Journal article
Cheah PY. and Parker M., (2025), Trends Microbiol, 33, 1260 - 1263
Biomarkers
Journal article
Brem AK. et al, (2025), Alzheimer S Dementia the Journal of the Alzheimer S Association, 21
Germline genomic testing to assess the suitability of stem cell donors in the treatment of haematological malignancy: clinical ethics commentary.
Journal article
Carley H. et al, (2025), J Med Ethics
Compliance with Clinical Guidelines and AI-Based Clinical Decision Support Systems: Implications for Ethics and Trust.
Journal article
Pardoux É. and Kerasidou A., (2025), Sci Eng Ethics, 31
The ethics of global health communication in the artificial intelligence era: avoiding poverty porn 2.0.
Journal article
Alenichev A. et al, (2025), Lancet Glob Health, 13, e1803 - e1804
Epistemic authority and medical AI: epistemological differences and challenges in medical practice.
Journal article
Kerasidou A. and Kerasidou CX., (2025), Med Health Care Philos
Why Public Health Is Not About Public Goods.
Journal article
Savić L., (2025), Public Health Ethics, 18
Public views on research with publicly available data in Switzerland: Implications for digital research, science communication, and policy.
Journal article
Daniore P. et al, (2025), Public Underst Sci, 34, 988 - 1008
Urgency of Realizing Bystander Concept in Preventing Crime Victims
Journal article
Hendriana R. et al, (2025), Indonesian Journal of Criminal Law Studies, 10, 763 - 800
Uncertain medicine: consent, culture and the limits of principles.
Journal article
Suleman M., (2025), J Med Ethics, 51, 735 - 737
Patient journeys for neglected tropical diseases in rural sub-Saharan Africa: a scoping review
Journal article
Frischer S. et al, (2025), Infectious Diseases of Poverty
Stakeholder analysis for 'One Health' approach to tackle antimicrobial resistance.
Journal article
Adhikari S. et al, (2025), BMJ Glob Health, 10
Ethics of Antibiotic Course Duration: Shorter is Better
Journal article
Johnson T. et al, (2025), American Journal of Bioethics
What is the access to NHS fertility treatments for women with Mayer-Rokitansky-Küster-Hauser syndrome across England? A freedom of information study.
Journal article
Milford K. et al, (2025), BMJ Open, 15
Empathy in mental health care interventions by conversational artificial intelligence
Chapter
Sedlakova J. et al, (2025), 250 - 263
just transition for antimicrobial resistance: the need for more forms and a broader scope of justice
Journal article
Tegama N. et al, (2025), Public Humanities
Harnessing Artificial Intelligence to Meet Global Healthcare Challenges: Reparative Algorithmic Impact Assessments in Context
Journal article
Racine E., (2025), Emerging Media
Narrative Review of Ethical Issues in the Use of Artificial Intelligence Enabled Diagnostics for Diabetic Retinopathy.
Journal article
Crew A. et al, (2025), J Eval Clin Pract, 31
Beyond techno-optimism: four critical limitations in the UK's AI policy for health care.
Journal article
Morley J. et al, (2025), Br J Gen Pract, 75, 421 - 424
Editorial: SHI Special Issue Promoting the Work of Racially Minoritised Sociologists Working on Medicine, Health and Illness.
Journal article
Hayanga B. et al, (2025), Sociol Health Illn, 47
Global Health in the Age of AI: Charting a Course for Ethical Implementation and Societal Benefit
Journal article
Morley J. et al, (2025), Minds and Machines, 35
Public support for food subsidy and tax scenarios to promote healthy and sustainable diets: Evidence from deliberative forums in two UK locations
Journal article
Forde H. et al, (2025), Food Policy
The Problem (and the Value) of Radical Moral Disagreement
Journal article
Wilkinson D. et al, (2025), Wellcome Open Research
Outcomes used to measure the clinical application of neonatal palliative and/or end-of-life care in neonatal settings: a systematic review.
Journal article
Gallagher K. et al, (2025), Arch Dis Child Fetal Neonatal Ed, 110, 467 - 472
COVID-19 mortality in Africa and Asia - Authors' reply.
Journal article
Bejon P. et al, (2025), Lancet Infect Dis, 25
Just War on Bugs? Ethical differences between antimalarial resistance and antibacterial resistance
Journal article
Johnson T. et al, (2025), BMJ Global Health
Human-Like Epistemic Trust? A Conceptual and Normative Analysis of Conversational AI in Mental Healthcare.
Journal article
Sedlakova J. et al, (2025), Am J Bioeth, 1 - 16
Views and attitudes about the offer of NIPT: a qualitative study of UK healthcare professionals.
Journal article
Young PD. and Sahan KM., (2025), BMC Med Ethics, 26
PEARLES challenges and solutions to the implementation of clinical research responses to epidemics and pandemics: a scoping review
Journal article
Crealock-Ashurst B. et al, (2025), eClinicalMedicine, 85, 103294 - 103294
Demystifying the commercial determinants of health in antimicrobial resistance through complex system dynamics.
Journal article
Smith C. et al, (2025), Health Promot Int, 40
Environmental sustainability and the limits of healthcare resource allocation.
Journal article
Hart J. et al, (2025), Bioethics, 39, 538 - 545
Life from death: ethical implications of uterus transplantation from deceased donors in global health.
Journal article
Suwalowska H. et al, (2025), BMJ Glob Health, 10
Review of research ethics guidelines on payment of healthy volunteers.
Journal article
Hasler N. et al, (2025), J Med Ethics
Injustice and inequality in the provision of perinatal palliative care
Journal article
Lin M. et al, (2025), Seminars in Perinatology, 152097 - 152097
The role of the enrolling clinician in emergency research conducted under an exception from informed consent.
Journal article
Sahan K. et al, (2025), Theor Med Bioeth, 46, 231 - 246
Tracing epistemic injustice in global antimicrobial resistance research.
Other
Cheah PY. et al, (2025), Trends Microbiol, 33, 577 - 579
Ethics of Identifying Individuals Involved in HIV Transmission Events by Phylogenetics in Molecular Surveillance
Journal article
Faber F. et al, (2025), Bioethics
Why global health security should be managed as a value-based enterprise
Journal article
Butcher F., (2025), Health Security
The heart of palliative care is relational: a scoping review of the ethics of care in palliative medicine.
Journal article
Bertaud S. et al, (2025), BMC Palliat Care, 24
Determining a role for Patient and Public Involvement and Engagement (PPIE) in genomic data governance for cancer care.
Journal article
Sahan K. et al, (2025), Eur J Hum Genet
Good bioethics and a good bioethicist: John McMillan's contributions to JME's legacy.
Other
Fritz Z. et al, (2025), J Med Ethics, 51, 359 - 360
Under-Funded and Under-Pressure: State Epidemiologists During the COVID-19 Response.
Journal article
Jones J. et al, (2025), Disaster Med Public Health Prep, 19
Temporal correlations between RBD-ACE2 blocking and binding antibodies to SARS-CoV-2 variants in CoronaVac-vaccinated individuals and their persistence in COVID-19 patients.
Journal article
Poolchanuan P. et al, (2025), Sci Rep, 15
The Rare Therapies Launchpad: a pilot program for individualized medicines in the UK.
Journal article
O'Connor DJ. et al, (2025), Nat Med, 31, 1379 - 1380
The value of large-scale programmes in human genomics.
Journal article
Horn R. et al, (2025), Eur J Hum Genet, 33, 563 - 569
Correction: Call for a fairer approach to authorship in publishing biomedical research.
Journal article
Cheah PY. and Parker M., (2025), Commun Med (Lond), 5
Ethical argument for establishing good manufacturing practice for phage therapy in the UK.
Journal article
Suleman M. et al, (2025), J Med Ethics, 51
Generational smoking bans: inegalitarian without disadvantage?
Journal article
Hart J. and Lignou S., (2025), J Med Ethics, 51
Sensory Entanglements: Knowledge Rituals in the Digital Age
Journal article
Racine E., (2025), SEQUITUR, 11
Creating different global health futures: mapping the health research ecosystem and taking decolonial action.
Journal article
Tagoe N. et al, (2025), BMC Health Serv Res, 25
Coercing for public health: (When) is coercion ethically justified?
Journal article
Johnson T. et al, (2025), Monash Bioethics Review
Coercing for Public Health: Reflections on the role of coercion in public health emergencies
Journal article
Abdool Karim S. et al, (2025), Monash Bioethics Review
Prepare: Improving End-of-Life Care Practice in Stroke Care: Insights from a National Survey and Semi-Structured Interviews.
Journal article
Lightbody CE. et al, (2025), Healthcare (Basel), 13
Ethical considerations in the routine identification of human remains in forensic mortuaries
Journal article
Reid KM. et al, (2025), Wellcome Open Research, 10, 171 - 171
Better engagement, better evidence: working in partnership with patients, the public, and communities in clinical trials with involvement and good participatory practice.
Journal article
Gobat N. et al, (2025), Lancet Glob Health, 13, e716 - e731
Call for a fairer approach to authorship in publishing biomedical research.
Journal article
Cheah PY. and Parker M., (2025), Commun Med (Lond), 5
Women's wellbeing as an empty declaration? A qualitative exploration of challenges in accessing termination of pregnancy due to fetal anomaly in Germany.
Journal article
Nov-Klaiman T. et al, (2025), BMC Med Ethics, 26
The dramaturgy of a health emergency: Women’s lived experiences of the Zika epidemic in Brazil
Journal article
Diniz D. and KINGORI P., (2025), Revista Ciência & Saúde Coletiva
Que(e)rying artificial intelligence use for infectious disease surveillance: The need for a reparative algorithmic praxis
Journal article
Racine EE., (2025), Big Data & Society, 12
Equity and timeliness as factors in the effectiveness of an ethical prenatal sequencing service: reflections from parents and professionals.
Journal article
Peter M. et al, (2025), Eur J Hum Genet, 33, 360 - 367
Negotiating severity behind the scenes: prenatal testing in Germany.
Journal article
Nov-Klaiman T. et al, (2025), Eur J Hum Genet, 33, 220 - 225
Finding Consensus on Trust in AI in Health Care: Recommendations From a Panel of International Experts.
Journal article
Starke G. et al, (2025), J Med Internet Res, 27
Clinical metagenomics: ethical issues
Journal article
Johnson T. et al, (2025), Journal of Medical Microbiology
ificial intelligence for modelling infectious disease epidemics.
Journal article
Kraemer MUG. et al, (2025), Nature, 638, 623 - 635
Experiences, perceptions and ethical considerations of the malaria infection study in Thailand.
Journal article
Naemiratch B. et al, (2025), BMC Med Ethics, 26
Rethinking the Evidence on COVID in Africa
Journal article
BEJON P. et al, (2025), The Lancet Infectious Diseases
Refining Established Practices for Research Question Definition to Foster Interdisciplinary Research Skills in a Digital Age: Consensus Study With Nominal Group Technique.
Journal article
Sedlakova J. et al, (2025), JMIR Med Educ, 11
Concept-formation and deep disagreements in theoretical and practical reasoning
Journal article
Wee M., (2025), Synthese
Co-Designing a Consumer-Focused Digital Reporting Health Platform to Improve Adverse Medicine Event Reporting: Protocol for a Multimethod Research Project (the ReMedi Project).
Journal article
Gebreyohannes EA. et al, (2025), JMIR Res Protoc, 14
dditional lessons to prepare for rapid research response to possible vertical transmission of Oropouche virus in Brazil.
Journal article
Diniz D. et al, (2025), Lancet Infect Dis, 25
Over the counter use of topical corticosteroid for skin conditions among patients before attending skin specialist clinic in Nepal: A qualitative study.
Journal article
Poudyal Y. et al, (2025), PLOS Glob Public Health, 5
Why Global Health Security Should be Managed as a Value-Based Enterprise.
Journal article
Butcher FC., (2025), Health Secur, 23, 276 - 281
Evaluation of a pilot family planning educational seminar and subsequent attitudes towards family planning among Muslim communities in Tanzania.
Journal article
Cordeiro AA. et al, (2025), PLoS One, 20
dditional lessons to prepare for rapid research response to possible vertical transmission of Oropouche virus in Brazil.
Journal article
Diniz D. et al, (2025), Lancet Infect Dis, 25
Views From State-Level Policy Actors About the US Federal Government COVID-19 Response.
Journal article
Jones J. et al, (2025), Health Secur, 23, 1 - 8
The Ethics of Humanlikeness in AI Therapy Chatbots.
Journal article
Sedlakova J., (2025), Hastings Cent Rep, 55, 33 - 35
To what extent are vulnerability issues included and addressed in Kenya's health and immunization policy documents? A systematic review of documents.
Journal article
Owino EA. et al, (2025), NIHR Open Res, 5
Rethinking ethical reflexivity and oversight in health research through an ecosystem approach: A workshop report
Journal article
Wright K. et al, (2025), Research Ethics
Design Space for the Critical Validation of LLM-Generated Tabular Data
Conference paper
Sachdeva M. et al, (2025), International Workshop on Visual Analytics
‘We can see a savage’: a case study of the colonial gaze in generative AI algorithms
Journal article
Alenichev A. et al, (2025), AI and Society
The Ethics of Molecular Epidemiology for Infectious Diseases
Chapter
Johnson SB. and Seeley J., (2025), 183 - 207
“Looking at the Big Picture”: A Qualitative Study of Ethics in Science Communication and Engagement
Journal article
Wilkinson C. et al, (2025), Science Communication
Engagement with migrant communities at the Thai-Myanmar border: Lessons learnt from a community advisory board
Journal article
Khirikoekkong N. et al, (2025), Research Ethics
qualitative comparison of data infrastructures for COVID-19 health-related data: lessons for the European Health Data Space
Journal article
Porta V. et al, (2025), Policy Studies
Mapping and Mitigating the Pains of Responsible Artificial Intelligence Implementation: An Analysis of Swiss Organizations
Conference paper
Vigano E. et al, (2025), 2025 IEEE SWISS CONFERENCE ON DATA SCIENCE, SDS, 119 - 126
Scalable Class-Centric Visual Interactive Labeling
Journal article
Matt M. et al, (2025), COMPUTERS & GRAPHICS-UK, 129
Healthcare Resource Allocation, Machine Learning, and Distributive Justice
Journal article
Webb J., (2025), American Philosophical Quarterly, 62, 33 - 52
The Problem (and the Value) of Radical Moral Disagreement.
Journal article
Lyreskog D. et al, (2025), Wellcome open research, 10
Exploratory study from an end-of-life research partnership network to improve access for ethnically diverse communities in one region.
Journal article
Cook EJ. et al, (2024), Health Soc Care Deliv Res, 1 - 23
lterations in care for children with special healthcare needs during the early COVID-19 pandemic: ethical and policy considerations.
Journal article
Jones J. et al, (2024), Monash Bioeth Rev
Ethical considerations in prenatal genomic testing.
Journal article
Horn R. et al, (2024), Best Pract Res Clin Obstet Gynaecol, 97
Stewardship and social justice: implications of using the precautionary principle to justify burdensome antimicrobial stewardship measures.
Journal article
Johnson T., (2024), Monash Bioeth Rev, 42, 1 - 15
ddressing the gap in health data management skills: an online self-guided course for researchers and health professionals.
Journal article
Waithira N. et al, (2024), BMC Med Educ, 24
Recognising uncertainty: an integrated framework for palliative care in perinatal medicine
Journal article
Wilkinson D. et al, (2024), Archives of Disease in Childhood: Fetal and Neonatal Edition
ill tribe community advisory board in Northern Thailand: lessons learned one year on.
Journal article
Perrone C. et al, (2024), Int J Equity Health, 23
Recognizing the ethical complexity of food policies and the role of the food industry
Journal article
Abdool Karim S. et al, (2024), Health Promotion International
Informing cognitively healthy research participants of modifiable dementia risk factors: Ethical implications
Journal article
GRAHAM M. et al, (2024), Journal of Alzheimer's Disease
I Advisory Council for Sustainable Economic Growth and Ethical Innovation in the Dominican Republic (CANIA)
Working paper
Saillant S. et al, (2024)
Community engagement around scrub typhus in northern Thailand: a pilot project.
Journal article
Perrone C. et al, (2024), Trans R Soc Trop Med Hyg, 118, 666 - 673
Overcoming barriers to single-cell RNA sequencing adoption in low- and middle-income countries.
Journal article
Boakye Serebour T. et al, (2024), Eur J Hum Genet, 32, 1206 - 1213
Hope pluralism in antenatal palliative care
Journal article
Bertaud S. et al, (2024), Journal of Medical Ethics
Coercive Public Health Policies Need Context-Specific Ethical Justifications
Journal article
Johnson T. et al, (2024), Monash Bioethics Review
Systemic intervention can be intrusive, too: a reply to Paetkau.
Journal article
Johnson T., (2024), J Med Ethics, 50, 692 - 693
Stewardship and Social Justice: Implications of using the precautionary principle to justify burdensome antimicrobial stewardship measures
Journal article
Johnson T., (2024), Monash Bioethics Review
Conceptualising care pathways for neglected tropical diseases in sub-Saharan Africa: A systematic scoping review
Preprint
Frischer SR. et al, (2024)
Facilitating home birth in perinatal palliative care: Case Report
Journal article
Bertaud S. et al, (2024), Palliative Medicine
"Lives versus livelihoods": Conflict and coherence between policy objectives in the COVID-19 pandemic.
Journal article
Esmonde K. et al, (2024), Soc Sci Med, 357
Machine learning, healthcare resource allocation, and patient consent.
Journal article
Webb J., (2024), New Bioeth, 30, 206 - 227
Evaluation of hydroxychloroquine or chloroquine for the prevention of COVID-19 (COPCOV): A double-blind, randomised, placebo-controlled trial.
Journal article
Schilling WHK. et al, (2024), PLoS Med, 21
Ethical preparedness of data monitoring committees (DMCs) to oversee international clinical trials: a qualitative descriptive study.
Journal article
Hinga A. et al, (2024), BMJ Glob Health, 9
Towards an understanding of the ethics of electronic consent in clinical trials.
Journal article
Sahan K. et al, (2024), Trials, 25
Digital endpoints in clinical trials: emerging themes from a multi-stakeholder Knowledge Exchange event.
Journal article
Tackney MS. et al, (2024), Trials, 25
nti-SARS-CoV-2 antibody dynamics after primary vaccination with two-dose inactivated whole-virus vaccine, heterologous mRNA-1273 vaccine booster, and Omicron breakthrough infection in Indonesian health care workers.
Journal article
Suwarti S. et al, (2024), BMC Infect Dis, 24
Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues.
Journal article
Sahan K. et al, (2024), J Med Ethics, 50, 517 - 522
Response to commentaries: ethical preparedness in genomic medicine-how NHS clinical scientists navigate ethical issues.
Journal article
Sahan K. and Lyle K., (2024), J Med Ethics, 50, 532 - 533
emisinin-resistant malaria in Africa demands urgent action.
Journal article
Dhorda M. et al, (2024), Science, 385, 252 - 254
Recognising uncertainty: an integrated framework for palliative care in perinatal medicine
Other
Wilkinson D., (2024)
Embedding community and public voices in co-created solutions to mitigate antimicrobial resistance (AMR) in Thailand using the 'Responsive Dialogues' public engagement framework.
Journal article
Poomchaichote T. et al, (2024), Antimicrob Resist Infect Control, 13
The Role of Humanization and Robustness of Large Language Models in Conversational Artificial Intelligence for Individuals With Depression: A Critical Analysis.
Journal article
Ferrario A. et al, (2024), JMIR Ment Health, 11
Ethico-legal considerations in the assessment of capacity
Journal article
Saunders KE. and Suleman M., (2024), Medicine (United Kingdom), 52, 450 - 452
Vulnerability and Response-Ability in the Pandemic Marketplace: Developing an Ethic of Care for Provisioning in Crisis
Journal article
Geiger S. et al, (2024), Journal of Business Ethics, 192, 441 - 459
just transition for antimicrobial resistance: planning for an equitable and sustainable future with antimicrobial resistance.
Journal article
Just Transitions for AMR Working Group ., (2024), Lancet, 403, 2766 - 2767
Ethical implications of disparities in translation genomic medicine: from research to practice.
Journal article
Suleman M. et al, (2024), J Med Ethics, 50, 435 - 436
Good participatory practice for coronavirus disease 2019 (COVID-19) research: the case of a COVID-19 prevention study
Preprint
Perrone C. et al, (2024)
Why digital innovation may not reduce healthcare's environmental footprint.
Journal article
Samuel G. et al, (2024), BMJ, 385
'Staying in the lane' of public health? Boundary-work in the roles of state health officials and experts in COVID-19 policymaking.
Journal article
Esmonde K. et al, (2024), Sociol Health Illn, 46, 1004 - 1022
scoping review of ethics review processes during public health emergencies in Africa.
Journal article
Orievulu K. et al, (2024), BMC Med Ethics, 25
Navigating climate responsibility: a critical examination of healthcare professionals' moral duties.
Journal article
Lignou S. and Hart J., (2024), J Med Ethics, 50, 376 - 377
Ethical implications of digital gaming interventions for mental health: Systematic review and critical appraisal
Preprint
Pavarini G. et al, (2024)
Is Resource Allocation that is Sensitive to Vaccination Status Coercive? Who Cares
Journal article
Johnson T., (2024), American Journal of Bioethics
"Uninformed consent" in clinical trials with cancer patients: A qualitative analysis of patients' and support persons' communication experiences and needs.
Journal article
Christine B. et al, (2024), Patient Educ Couns, 122
Effect of recipient age on prioritisation for liver transplantation in the UK: a population-based modelling study.
Journal article
Attia A. et al, (2024), Lancet Healthy Longev, 5, e346 - e355
Community engagement and the centrality of 'working relationships' in health research.
Journal article
Vincent R. et al, (2024), BMJ Glob Health, 9
Research ethics and artificial intelligence for global health: perspectives from the global forum on bioethics in research.
Journal article
Shaw J. et al, (2024), BMC Med Ethics, 25
Ethical and social implications of public–private partnerships in the context of genomic/big health data collection
Journal article
Horn R., (2024), European Journal of Human Genetics
Social, Ethical and Regulatory implications of conducting a malaria Vaccine Efficacy trial in a human infection study in Kenya (SERVE-Kenya): A study protocol
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Chi PC. et al, (2024), Wellcome Open Research, 9, 193 - 193
Developing an ethical evaluation framework for coercive antimicrobial stewardship policies
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Johnson T., (2024), Public Health Ethics
The elephant in the room: reflecting on text-to-image generative AI and global health images.
Journal article
Alenichev A. et al, (2024), BMJ Glob Health, 9
Indonesian Stakeholders' Perspectives on Warning Signs and Beliefs about Suicide.
Journal article
Setiyawati D. et al, (2024), Behav Sci (Basel), 14
Interventions to address antimicrobial resistance: an ethical analysis of key tensions and how they apply in low- income and middle-income countries.
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Pokharel S. et al, (2024), BMJ Glob Health, 9
Stewardship according to context: justifications for coercive antimicrobial stewardship policies in agriculture and their limitations
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Johnson T., (2024), Bioethics
'Something that helped the whole picture': Experiences of parents offered rapid prenatal exome sequencing in routine clinical care in the English National Health Service.
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McInnes-Dean H. et al, (2024), Prenat Diagn, 44, 465 - 479
‘A commitment to Equality, Diversity and Inclusion’: a conceptual framework for equality of opportunity in Patient and Public Involvement in research
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Lignou S. et al, (2024), Research Ethics, 20, 288 - 303
Supporting patient decision-making in non-invasive prenatal testing: a comparative study of professional values and practices in England and France.
Journal article
Bowman-Smart H. et al, (2024), BMC Med Ethics, 25
The role of point-of-care ultrasound in the assessment of schistosomiasis-induced liver fibrosis: a systematic scoping review
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Ockenden E. et al, (2024), PLoS Neglected Tropical Diseases
The myth of translational bioethics.
Journal article
Dunn M. and Sheehan M., (2024), Bioethics, 38, 196 - 203
Carbon Accounting in the Digital Industry: The Need to Move towards Decision Making in Uncertainty.
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Samuel G. et al, (2024), Sustainability, 16
Layered vulnerability and researchers' responsibilities: learning from research involving Kenyan adolescents living with perinatal HIV infection.
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Kimani M. et al, (2024), BMC Med Ethics, 25
ssembling a global health image: Ethical and pragmatic tensions through the lenses of photographers
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Suwalowska H., (2024), PLOS Global Public Health
The wrong word for the job? The ethics of collecting data on ‘race’ in academic publishing
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McMillan J. et al, (2024), Journal of Medical Ethics
Emerging Enterovirus A71 Subgenogroup B5 Causing Severe Hand, Foot, and Mouth Disease, Vietnam, 2023.
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Chau NVV. et al, (2024), Emerg Infect Dis, 30, 363 - 367
'A good decision is the one that feels right for me': Codesign with patients to inform theoretical underpinning of a decision aid website.
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Kohut K. et al, (2024), Health Expect, 27
For the good of the globe: moral reasons for states to mitigate global catastrophic biological risks
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Johnson T., (2024), Journal of Bioethical Inquiry
“Crowded” paediatrics
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Wilkinson D. and Bertaud S., (2024), Archives of Disease in Childhood
I-driven decision support systems and epistemic reliance: a qualitative study on obstetricians' and midwives' perspectives on integrating AI-driven CTG into clinical decision making.
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Dlugatch R. et al, (2024), BMC Med Ethics, 25
Hypothetical acceptability of minimally invasive tissue sampling and considerations for practice: A qualitative study in Vietnam.
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Phuong ND. et al, (2024), Glob Public Health, 19
Global health photography behind the façade of empowerment and decolonisation.
Journal article
Alenichev A. et al, (2024), Glob Public Health, 19
Southeast Asia initiative to combat SARS-CoV-2 variants (SEACOVARIANTS) consortium.
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Nhu LNT. et al, (2024), Wellcome Open Res, 9
Large-scale evaluation of outcomes after a genetic diagnosis in children with severe developmental disorders.
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Copeland H. et al, (2024), Genet Med Open, 2
Data sharing and reuse in clinical research: Are we there yet? A cross-sectional study on progress, challenges and opportunities in LMICs.
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Waithira N. et al, (2024), PLOS Glob Public Health, 4
Considerations for legal, ethical, and effective practice in dementia research.
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David MCB. et al, (2024), Brain Commun, 6
The ethical challenges of diversifying genomic data: A qualitative evidence synthesis.
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Hardcastle F. et al, (2024), Camb Prism Precis Med, 2
Scholarly Publishing, Boundary Processes, and the Problem of Fake Peer Reviews.
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Bell K. et al, (2024), Sci Technol Human Values, 49, 78 - 104
Ethical Issues Faced by Data Monitoring Committees: Results from an Exploratory Qualitative Study.
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Shah SK. et al, (2024), Ethics Hum Res, 46, 2 - 13
Interests and Choices in Determining Death by Neurological Criteria.
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Padela AI. and Suleman M., (2024), Am J Bioeth, 24, 118 - 121
Southeast Asia initiative to combat SARS-CoV-2 variants (SEACOVARIANTS) consortium.
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Nhu LNT. et al, (2024), Wellcome Open Res, 9
Limited Aggregation’s Non-Fatal Non-Dilemma
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Hart J., (2024), Australasian Journal of Philosophy
Introduction: Research Ethics and Health Policy in Epidemics and Pandemics
Chapter
Parker M. et al, (2024), 1 - 22
Southeast Asia initiative to combat SARS-CoV-2 variants (SEACOVARIANTS) consortium.
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Nhu LNT. et al, (2024), Wellcome open research, 9
Solidarity during the COVID-19 pandemic: evidence from a nine-country interview study in Europe.
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Kieslich K. et al, (2023), Med Humanit, 49, 511 - 520
The challenges and potential solutions of achieving meaningful consent amongst research participants in northern Thailand: a qualitative study.
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Greer RC. et al, (2023), BMC Med Ethics, 24
Getting rights right: Implementing 'Martha's Rule'
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GRAHAM M. et al, (2023), Journal of Medical Ethics
Ethical and cultural implications for conducting verbal autopsies in South and Southeast Asia: a qualitative study.
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Htun NSN. et al, (2023), BMJ Glob Health, 8
Ethical issues in Nipah virus control and research: addressing a neglected disease
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Johnson T. et al, (2023), Journal of Medical Ethics
Online on the frontline: A longitudinal social media analysis of UK healthcare workers' attitudes to COVID-19 vaccines using the 5C framework.
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Déom N. et al, (2023), Soc Sci Med, 339
Women's preferences for NIPT as a first-line test in England and France: Challenges for genetic counseling practices
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Horn R. et al, (2023), Journal of Genetic Counseling
Disentangling the intersection of inequities with health and malaria exposure: key lessons from rural communities in Northern Borneo.
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Naserrudin NA. et al, (2023), Malar J, 22
Book Review: 'Natural law and human rights: toward a recovery of practical reason', by Pierre Manent, translated by Ralph C. Hancock, Notre Dame, IN, University of Notre Dame Press, 2020.
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Wee M., (2023), The New Bioethics, 1 - 4
Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children’s palliative care service over 14 years
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Bertaud S. et al, (2023), BMC Palliative Care
"The Nobodies": unidentified dead bodies-a global health crisis requiring urgent attention.
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Suwalowska H. et al, (2023), Lancet Glob Health, 11, e1691 - e1693
Understanding Pandemic Solidarity: Mutual Support During the First COVID-19 Lockdown in the United Kingdom.
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Johnson S. et al, (2023), Public Health Ethics, 16, 245 - 260
The importance of getting the ethics right in a pandemic treaty.
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Schaefer GO. et al, (2023), Lancet Infect Dis, 23, e489 - e496
Should medicine be colour blind?
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Suleman M. and Qureshi Z., (2023), J Med Ethics, 49, 725 - 726
Correction to: Data-driven research and healthcare: public trust, data governance and the NHS.
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Kerasidou A. and Kerasidou CX., (2023), BMC Med Ethics, 24
Trust and the Goldacre Review: why trusted research environments are not about trust.
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Graham M. et al, (2023), J Med Ethics, 49, 670 - 673
Vaccine mandates and public trust do not have to be antagonistic.
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Goldenberg MJ. et al, (2023), Nat Hum Behav, 7, 1605 - 1606
Challenges and best practices for digital unstructured data enrichment in health research: A systematic narrative review.
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Sedlakova J. et al, (2023), PLOS Digit Health, 2
Reflections before the storm: the AI reproduction of biased imagery in global health visuals.
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Alenichev A. et al, (2023), Lancet Glob Health, 11, e1496 - e1498
The relationship between speculation and translation in bioethics: methods and methodologies
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Johnson T. and Romanis EC., (2023), Monash Bioethics Review
The far-reaching implications of China’s AI-powered surveillance state post-COVID
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Racine E., (2023), Surveillance and Society, 21, 269 - 275
The impact of anti-malarial markets on artemisinin resistance: perspectives from Burkina Faso.
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Guissou RM. et al, (2023), Malar J, 22
Greater Than The Sum Of Its Parts: Exploring a systemic design-inspired responsible innovation framework for addressing ICT carbon emissions
Conference paper
Smith M. et al, (2023)
Reasons for Not Participating in PCTs: The Comparative Case of Emergency Research under an Exception from Informed Consent (EFIC).
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Sahan K. et al, (2023), Am J Bioeth, 23, 70 - 72
Fever and health-seeking behaviour among migrants living along the Thai-Myanmar border: a mixed-methods study.
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Khirikoekkong N. et al, (2023), BMC Infect Dis, 23
Data-driven research and healthcare: public trust, data governance and the NHS.
Journal article
Kerasidou A. and Kerasidou CX., (2023), BMC Med Ethics, 24
The impact of C-reactive protein testing on treatment-seeking behavior and patients' attitudes toward their care in Myanmar and Thailand.
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Greer RC. et al, (2023), Healthc Low Resour Settings, 11
Public health use of HIV phylogenetic data in sub-Saharan Africa: ethical issues.
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Jamrozik E. et al, (2023), BMJ Glob Health, 8
Preserving women's reproductive autonomy while promoting the rights of people with disabilities?: the case of Heidi Crowter and Maire Lea-Wilson in the light of NIPT debates in England, France and Germany.
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Perrot A. and Horn R., (2023), J Med Ethics, 49, 471 - 473
Germline mismatch repair (MMR) gene analyses from English NHS regional molecular genomics laboratories 1996-2020: development of a national resource of patient-level genomics laboratory records.
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Loong L. et al, (2023), J Med Genet, 60, 669 - 678
Data for sale: trust, confidence and sharing health data with commercial companies.
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Graham M., (2023), J Med Ethics, 49, 515 - 522
Beyond translations, perspectives for researchers to consider to enhance comprehension during consent processes for health research in sub-saharan Africa: a scoping review.
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Busisiwe N. et al, (2023), BMC Med Ethics, 24
Trustworthy artificial intelligence and ethical design: public perceptions of trustworthiness of an AI-based decision-support tool in the context of intrapartum care.
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Dlugatch R. et al, (2023), BMC Med Ethics, 24
amework for stakeholder engagement in the adoption of new anti-malarial treatments in Africa: a case study of Nigeria.
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Mokuolu OA. et al, (2023), Malar J, 22
Community engagement among forest goers in a malaria prophylaxis trial: implementation challenges and implications.
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Conradis-Jansen F. et al, (2023), Malar J, 22
cting on sex and gender in medical innovation is good for business.
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Vijayasingham L. et al, (2023), BMJ, 381
Experiences, coping strategies and perspectives of people in Malaysia during the COVID-19 pandemic.
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Cheah PK. et al, (2023), BMC Public Health, 23
Old and new challenges regarding comparable and viable data sharing in population-scale genomic research.
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Paediatric palliative care in the NICU: A new era of integration.
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Bertaud S. et al, (2023), Semin Fetal Neonatal Med, 28
Uncertainties about the quality of medical products globally: lessons from multidisciplinary research.
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Kingori P. et al, (2023), BMJ Glob Health, 6
Raising awareness of antimicrobial resistance: development of an 'antibiotic footprint calculator'.
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Prapharsavat R. et al, (2023), J Antimicrob Chemother, 78, 1317 - 1321
Respecting relational agency in the context of vulnerability: What can research ethics learn from the social sciences?
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Roest J. et al, (2023), Bioethics, 37, 379 - 388
Conversational Artificial Intelligence in Psychotherapy: A New Therapeutic Tool or Agent?
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Sedlakova J. and Trachsel M., (2023), Am J Bioeth, 23, 4 - 13
Conversational Artificial Intelligence in Psychotherapy: A New Therapeutic Tool or Agent?
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Sedlakova J. and Trachsel M., (2023), Am J Bioeth, 23, 4 - 13
Genomic Diagnosis of Rare Pediatric Disease in the United Kingdom and Ireland.
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Wright CF. et al, (2023), N Engl J Med, 388, 1559 - 1571
Invisibility in global health: A case for disturbing bioethical frameworks
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Alenichev A. et al, (2023), Wellcome Open Research, 8, 191 - 191
End of life care in the setting of extreme prematurity – practical challenges and ethical controversies
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WILKINSON D. and Bertaud S., (2023), Seminars in Fetal and Neonatal Medicine
The impact of artificial intelligence on the person-centred, doctor-patient relationship: some problems and solutions.
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Sauerbrei A. et al, (2023), BMC Med Inform Decis Mak, 23
Putting global health high on the agenda of medical schools.
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Kutalek R. et al, (2023), Wien Med Wochenschr, 173, 131 - 137
practical checklist for return of results from genomic research in the European context
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ORMONDROYD E., (2023), European Journal of Human Genetics
The Future of Clinical Phage Therapy in the United Kingdom.
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Jones JD. et al, (2023), Viruses, 15
Sexuality and gender within Afghanistan's bacha bereesh population
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Racine E., (2023), Equality, Diversity and Inclusion: An International Journal
Investigating the Secondary Use of Clinical Research Data: Protocol for a Mixed Methods Study.
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Waithira N. et al, (2023), JMIR Res Protoc, 12
Intravenous Doxycycline, Azithromycin, or Both for Severe Scrub Typhus.
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Varghese GM. et al, (2023), N Engl J Med, 388, 792 - 803
Managing Patient and Clinician Expectations of Phage Therapy in the United Kingdom.
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Jones JD. et al, (2023), Antibiotics (Basel), 12
One virus, many lives: a qualitative study of lived experiences and quality of life of adults from diverse backgrounds living in the UK during the COVID-19 pandemic.
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Gogoi M. et al, (2023), BMJ Open, 13
The social and socio-political embeddedness of COVID-19 vaccination decision-making: A five-country qualitative interview study from Europe
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Zimmermann BM. et al, (2023), Vaccine, 41, 2084 - 2092
Democratising or disrupting diagnosis? Ethical issues raised by the use of AI tools for rare disease diagnosis
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KERASIDOU A., (2023), SSM - Qualitative Research in Health
Democratising or disrupting diagnosis? Ethical issues raised by the use of AI tools for rare disease diagnosis
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HALLOWELL N. et al, (2023), Social Science & Medicine Qualitative Research in Health
Canadians' opinions towards COVID-19 data-sharing: a national cross-sectional survey.
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Savic Kallesoe SA. et al, (2023), BMJ Open, 13
Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.
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Horn R. et al, (2023), Eur J Hum Genet, 31, 142 - 147
Not putting the cart before the horse: the complex social and ethical terrain of prenatal exome sequencing.
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Boardman F. and Horn R., (2023), Eur J Hum Genet, 31, 134 - 135
Considering the Collective in Ethical Decision-Making Concerning Non-Medical Uses of Non-Invasive Prenatal Testing
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Johnson T., (2023), The American Journal of Bioethics
The relationship between speculation and translation in Bioethics: methods and methodologies
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Johnson T. and Romanis EC., (2023), MONASH BIOETHICS REVIEW
Invisibility in global health: A case for disturbing bioethical frameworks.
Preprint
Alenichev A. et al, (2023)
Establishing a single-sex controlled human Schistosoma mansoni infection model for Uganda: protocol for safety and dose-finding trial.
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Abaasa A. et al, (2023), Immunother Adv, 3
Navigating uncertainties of death: Minimally Invasive Autopsy Technology in global health.
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Suwalowska H. et al, (2023), Glob Public Health, 18
Correction: Ethical challenges of using remote monitoring technologies for clinical research: A case study of the role of local research ethics committees in the RADAR-AD study.
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Muurling M. et al, (2023), PLoS One, 18
Use of antimicrobials during the COVID-19 pandemic: A qualitative study among stakeholders in Nepal.
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Vulnerability and childhood immunization in Kenya. A systematic review of policy documents protocol.
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The hidden emotional labour behind ensuring the social value of research: Experiences of frontline health policy and systems researchers based in Kenya during COVID-19.
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Nzinga J. et al, (2023), PLOS Glob Public Health, 3
Migration health ethics in Southeast Asia: a scoping review.
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Ng SH. et al, (2023), Wellcome Open Res, 8
Ethical issues of involving people with intellectual disabilities in genomic research: a scoping review protocol.
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Chepkirui D. et al, (2023), Wellcome Open Res, 8
Use of functional magnetic resonance imaging to assess cognition and consciousness in severe Guillain-Barré syndrome.
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Norton L. et al, (2023), Int J Clin Health Psychol, 23
Comparison of analog and digital patient decision aids for the treatment of depression: a scoping review.
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Sedlakova J. et al, (2023), Front Digit Health, 5
Healthcare resource allocation decisions and non-emergency treatments in the aftermath of Covid-19 pandemic. How should children with chronic illness feature in prioritisation processes?
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Lignou S. et al, (2023), Wellcome Open Res, 8
Vulnerability and agency in research participants' daily lives and the research encounter: A qualitative case study of participants taking part in scrub typhus research in northern Thailand.
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Greer RC. et al, (2023), PLoS One, 18
Culturally responsive research ethics: How the socio-ethical norms of Arr-nar/Kreng-jai inform research participation at the Thai-Myanmar border.
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Khirikoekkong N. et al, (2023), PLOS Glob Public Health, 3
Ethical challenges of using remote monitoring technologies for clinical research: A case study of the role of local research ethics committees in the RADAR-AD study.
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Muurling M. et al, (2023), PLoS One, 18
Melioidosis Vaccines (MeVa): Attitudes to vaccines, melioidosis and clinical trials in key stakeholders in Ubon Ratchathani, Thailand.
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Khirikoekkong N. et al, (2023)
apid review of community engagement and informed consent processes for adaptive platform trials and alternative design trials for public health emergencies.
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Davies A. et al, (2023), Wellcome Open Res, 8
Ethical challenges of using remote monitoring technologies for clinical research: A case study of the role of local research ethics committees in the RADAR-AD study.
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Muurling M. et al, (2023), PLoS One, 18
THE ETHICS OF GENETIC ENHANCEMENT: Key Concepts and Future Prospects
Chapter
Anomaly J. and Johnson T., (2023), 145 - 153
cceptance of CRISPR-based technologies for clinical application: a Thematic Analysis of Attitudes on Novel Gene Therapies in Undergraduates
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Jones JC. et al, (2023), Journal of Biological Education, 57, 358 - 369
Ethical Hotspots in Infectious Disease Surveillance for Global Health Security: Social Justice and Pandemic Preparedness
Chapter
Parker M., (2023), 277 - 294
Ethical Issues in Prenatal Genetic Diagnosis: new guidance of the British Society for Genetic Medicine
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Horn R. et al, (2023), EUROPEAN JOURNAL OF HUMAN GENETICS, 31, 682 - 683
Invisibility in global health: A case for disturbing bioethical frameworks.
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Alenichev A. et al, (2023), Wellcome open research, 8
Melioidosis Vaccines (MeVa): Attitudes to vaccines, melioidosis and clinical trials in key stakeholders in Ubon Ratchathani, Thailand.
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Khirikoekkong N. et al, (2023), Wellcome open research, 8
Genetic health in British Muslim populations: Analysis of consanguinity, interventions and sociocultural contexts
Chapter
Divan A. et al, (2022), 103 - 123
Caring for Muslim patients and families at the end of life: Empirical research analysing the perspectives of service users and providers
Chapter
Suleman M., (2022), 124 - 146
Louis Pasteur, COVID-19, and the social challenges of epidemics.
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Giles-Vernick T. et al, (2022), Lancet, 400, 2166 - 2168
Systems Thinking and Efficiency under Emissions Constraints: Addressing Rebound Effects in Digital Innovation and Policy
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Widdicks K. et al, (2022), Patterns
Ethical, Legal and Social Issues in Diversifying Genomic Data: Literature Review and Synthesis
Preprint
Hardcastle F. et al, (2022)
Investigating the Secondary Use of Clinical Research Data: Protocol for a Mixed Methods Study (Preprint)
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Waithira N. et al, (2022)
Guardians and research staff experiences and views about the consent process in hospital-based paediatric research studies in urban Malawi: A qualitative study.
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Gondwe MJ. et al, (2022), BMC Med Ethics, 23
Equitable Design and Use of Digital Surveillance Technologies During COVID-19: Norms and Concerns.
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Pratt B. et al, (2022), J Empir Res Hum Res Ethics, 17, 573 - 586
Medical ethics and the climate change emergency.
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Auckland C. et al, (2022), J Med Ethics, 48, 939 - 940
The practical, ethical and legal reasons why patients should not be transferred between NHS trusts for phage therapy.
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Jones JD. et al, (2022), J Patient Saf Risk Manag, 27, 263 - 267
Democratic research: Setting up a research commons for a qualitative, comparative, longitudinal interview study during the COVID-19 pandemic.
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Zimmermann BM. et al, (2022), SSM Qual Res Health, 2
Equitable Design and Use of Digital Surveillance Technologies During COVID-19: Norms and Concerns.
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Pratt B. et al, (2022), J Empir Res Hum Res Ethics, 17, 573 - 586
The invisible body work of 'last responders' - ethical and social issues faced by the pathologists in the Global South.
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Suwalowska H., (2022), Glob Public Health, 17, 4183 - 4194
nticipating hopes, fears and expectations towards COVID-19 vaccines: A qualitative interview study in seven European countries.
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Paul KT. et al, (2022), SSM Qual Res Health, 2
Making global health 'work': Frontline workers' labour in research and interventions.
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Kingori P. et al, (2022), Glob Public Health, 17, 4077 - 4086
Doing 'reciprocity work': The role of fieldworkers in a mass drug administration trial in the Gambia.
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Fehr A. et al, (2022), Glob Public Health, 17, 4116 - 4128
bortion decision-making process trajectories and determinants in low- and middle-income countries: A mixed-methods systematic review and meta-analysis.
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Lokubal P. et al, (2022), EClinicalMedicine, 54
The proxy dilemma: Informed consent in paediatric clinical research - a case study of Thailand.
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Varadan S. et al, (2022), Dev World Bioeth, 22, 288 - 297
"I don't think people are ready to trust these algorithms at face value": trust and the use of machine learning algorithms in the diagnosis of rare disease.
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Hallowell N. et al, (2022), BMC Med Ethics, 23
Sharing genomic data for health research: Institutional trust and trustworthiness, and informed consent
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Graham M., (2022), Canadian Medical Association Journal, 194, E1511 - E1512
Le(s) paysage(s) éthique(s) du dépistage prénatal non invasif en Angleterre, en France et en Allemagne : résultats d’une analyse documentaire comparative
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Horn R. and Perrot A., (2022), Cahiers Droit, Sciences & Technologies
Justifying the More Restrictive Alternative: Ethical Justifications for One Health AMR Policies Rely on Empirical Evidence
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Johnson T. and Matlock W., (2022), Public Health Ethics
Before and beyond trust: reliance in medical AI.
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Kerasidou CX. et al, (2022), J Med Ethics, 48, 852 - 856
Funder priority for vaccines: Implications of a weak Lockean claim.
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Muralidharan A. et al, (2022), Bioethics, 36, 978 - 988
Mixed-Methods Approach to Identify Farmers’ Perception and Practices Regarding Antibiotic Use in Vietnam
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Thu TTA. et al, (2022), Social Sciences, 11
Ownership of individual-level health data, data sharing, and data governance.
Journal article
Piasecki J. and Cheah PY., (2022), BMC Med Ethics, 23
pragmatic randomized controlled trial of standard care versus steroids plus standard care for treatment of pneumonia in adults admitted to Kenyan hospitals (SONIA)
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Lucinde R. et al, (2022), Wellcome Open Research, 7, 269 - 269
Children with medical complexities: their distinct vulnerability in health systems’ Covid-19 response and their claims of justice in the recovery phase
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LIGNOU S. and Sheehan M., (2022), Medicine Health Care and Philosophy
Vaccination of individuals lacking decision-making capacity during a public health emergency
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Schaefer GO. et al, (2022), Journal of Law and the Biosciences
Fear of Dementia and the Obligation to Provide Aggregate Research Results to Study Participants.
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Graham M. et al, (2022), Camb Q Healthc Ethics, 31, 498 - 505
Resource allocation in genetic and genomic medicine.
Journal article
Buchanan J. et al, (2022), Journal of community genetics, 13, 463 - 466
Correction: Lim et al. Patient-Reported Questionnaires to Identify Adverse Drug Reactions: A Systematic Review. Int. J. Environ. Res. Public Health 2021, 18, 11877.
Journal article
Lim R. et al, (2022), Int J Environ Res Public Health, 19
SARS-CoV-2 Genomic Contextual Data Harmonization: Recommendations from a Mixed Methods Analysis of COVID-19 Case Report Forms Across Canada
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Cameron R. et al, (2022)
Science in the time of COVID-19: Reflections on the UK Events Research Programme.
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Marteau TM. et al, (2022), Nat Commun, 13
Most healthcare interventions tested in Cochrane Reviews are not effective according to high quality evidence: a systematic review and meta-analysis
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Howick J. et al, (2022), JOURNAL OF CLINICAL EPIDEMIOLOGY, 148, 160 - 169
Exploring the ethics of genetic prioritisation for COVID-19 vaccines.
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Bruce J. and Johnson SB., (2022), Eur J Hum Genet, 30, 875 - 879
Moving from Collaboration to Co-production in International Research
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Heath C. and Mormina M., (2022), European Journal of Development Research, 34, 1704 - 1715
Igorithmic Ethics: A Technically Sweet Solution to a Non-Problem.
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Sauerbrei A. et al, (2022), Am J Bioeth, 22, 28 - 30
Experience of Kenyan researchers and policy-makers with knowledge translation during COVID-19: a qualitative interview study.
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Guleid FH. et al, (2022), BMJ open, 12, e059501 - e059501
Suicide first aid guidelines for Indonesia: a Delphi consensus study.
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Setiyawati D. et al, (2022), J Ment Health, 31, 410 - 431
NIPT and the concerns regarding 'routinisation'.
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Horn R., (2022), Eur J Hum Genet, 30, 637 - 638
Extreme events and gender-based violence: a mixed-methods systematic review.
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van Daalen KR. et al, (2022), Lancet Planet Health, 6, e504 - e523
Bringing ethics into governance: the case of the UK COVID-19 contact tracing app.
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Samuel G. and Lucivero F., (2022), Int J Health Gov, 27, 180 - 193
Should peer reviewers be paid to review academic papers?
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Cheah PY. and Piasecki J., (2022), Lancet, 399
Ethical considerations around volunteer payments in a malaria human infection study in Kenya: an embedded empirical ethics study.
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Chi PC. et al, (2022), BMC Med Ethics, 23
Pursuing impact in research: towards an ethical approach.
Journal article
Bærøe K. et al, (2022), BMC Med Ethics, 23
International Country-Level Trends, Factors, and Disparities in Compassionate Use Access to Unlicensed Products for Patients With Serious Medical Conditions.
Journal article
Aliu P. et al, (2022), JAMA Health Forum, 3
Use of home parenteral nutrition in severely neurologically impaired children.
Journal article
Ribeiro-Mourão F. et al, (2022), Arch Dis Child, 107, 365 - 370
Tie-breaks and Two Types of Relevance
Journal article
Hart J., (2022), Ethical Theory and Moral Practice, 25, 315 - 334
eappraisal of public engagement in Oxford during the pandemic: three case studies.
Journal article
Farrell M. and Wilkinson C., (2022), Res Involv Engagem, 8
Governing Global Antimicrobial Resistance: 6 Key Lessons From the Paris Climate Agreement
Other
HARRISON M. et al, (2022), American Journal of Public Health
The Environmental Sustainability of Digital Technologies: Stakeholder Practices and Perspectives
Journal article
Samuel G. et al, (2022), Sustainability, 14, 3791 - 3791
Towards responsible, lawful and ethical data processing: Patient data in the UK
Journal article
Johnson T. et al, (2022), Internet Policy Review, 11
Pandemic preparedness and responsiveness of research review committees: lessons from review of COVID-19 protocols at KEMRI Wellcome Trust Research Programme in Kenya
Journal article
Kamuya D. and KINYANJUI S., (2022), Wellcome Open Research
Quantifying prediction of pathogenicity for within-codon concordance (PM5) using 7541 functional classifications of BRCA1 and MSH2 missense variants.
Journal article
Loong L. et al, (2022), Genet Med, 24, 552 - 563
Three Harm-Based Arguments for a Moral Obligation to Vaccinate
Journal article
Ivanković V. and Savić L., (2022), Health Care Analysis, 30, 18 - 34
dults' views and experiences of vaccines developed in response to the COVID-19 pandemic: a qualitative evidence synthesis [Protocol]
Journal article
Maria AR. et al, (2022), Cochrane Database of Systematic Reviews
Community engagement for malaria elimination in the Greater Mekong Sub-region: a qualitative study among malaria researchers and policymakers.
Journal article
Kaehler N. et al, (2022), Malar J, 21
Optimising Exome Prenatal Sequencing Services (EXPRESS): a study protocol to evaluate rapid prenatal exome sequencing in the NHS Genomic Medicine Service
Journal article
Hill M. et al, (2022), NIHR Open Research, 2, 10 - 10
Strengthening the Health System as a Strategy to Achieving a Universal Health Coverage in Underprivileged Communities in Africa: A Scoping Review.
Journal article
Jaca A. et al, (2022), Int J Environ Res Public Health, 19
Facilitators and barriers to the delivery of palliative care to children with life-limiting and life-threatening conditions: a qualitative study of the experiences and perceptions of healthcare professionals.
Journal article
Mitchell S. et al, (2022), Arch Dis Child, 107, 59 - 64
Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective.
Journal article
Ewuoso C. et al, (2022), Front Genet, 13
n exploratory qualitative study of undergraduate men's perspectives on sexual violence bystander education.
Journal article
Hammock AC. et al, (2022), J Am Coll Health, 70, 1223 - 1230
Undertaking Community Engagement for a Controlled Human Malaria Infection Study in Kenya: Approaches and Lessons Learnt.
Journal article
Mumba N. et al, (2022), Front Public Health, 10
n exploratory qualitative study of undergraduate men's perspectives on sexual violence bystander education.
Journal article
Hammock AC. et al, (2022), J Am Coll Health, 70, 1223 - 1230
Sustainable biobanks: a case study for a green global bioethics.
Journal article
Samuel G. et al, (2022), Glob Bioeth, 33, 50 - 64
Ethics of telepsychiatry versus face-to-face treatment: let the patients make their autonomous choice.
Journal article
Trachsel M. and Sedlakova J., (2022), J Med Ethics, 48, 32 - 33
Is mpox an STI? The societal aspects and healthcare implications of a key question.
Journal article
Garcia Iglesias J. et al, (2022), Wellcome Open Res, 7
Normative positions towards COVID-19 contact-tracing apps: findings from a large-scale qualitative study in nine European countries.
Journal article
Lucivero F. et al, (2022), Crit Public Health, 32, 5 - 18
COVID-19 contact tracing apps: UK public perceptions.
Journal article
Samuel G. et al, (2022), Crit Public Health, 32, 31 - 43
Ethical Reasoning During a Pandemic: Results of a Five Country European Study.
Journal article
Johnson SB. et al, (2022), AJOB Empir Bioeth, 13, 67 - 78
Facilitators and barriers to the delivery of palliative care to children with life-limiting and life-threatening conditions: a qualitative study of the experiences and perceptions of healthcare professionals.
Journal article
Mitchell S. et al, (2022), Arch Dis Child, 107, 59 - 64
Treatment-seeking and recovery among young undernourished children post-hospital discharge in Bangladesh: A qualitative study.
Journal article
Uddin MF. et al, (2022), PLoS One, 17
Pandemic preparedness and responsiveness of research review committees: lessons from review of COVID-19 protocols at KEMRI Wellcome Trust Research Programme in Kenya.
Journal article
Hinga A. et al, (2022), Wellcome Open Res, 7
The impact of COVID-19 non-pharmaceutical interventions on the lived experiences of people living in Thailand, Malaysia, Italy and the United Kingdom: A cross-country qualitative study.
Journal article
Schneiders ML. et al, (2022), PLoS One, 17
Health professionals and scientists' views on genome-wide NIPT in the French public health system: Critical analysis of the ethical issues raised by prenatal genomics.
Journal article
Perrot A. and Horn R., (2022), PLoS One, 17
Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective.
Journal article
Ewuoso C. et al, (2022), Front Genet, 13
Under the Mask: A Film on Tuberculosis at the Thai-Myanmar Border.
Journal article
Delmas MV. et al, (2022), Front Public Health, 10
Editorial: Public and community engagement in health science research: Openings and obstacles for listening and responding in the majority world.
Journal article
Black GF. et al, (2022), Front Public Health, 10
Optimising Exome Prenatal Sequencing Services (EXPRESS): a study protocol to evaluate rapid prenatal exome sequencing in the NHS Genomic Medicine Service.
Journal article
Hill M. et al, (2022), NIHR Open Res, 2
Power and Powerlessness in a Group Based Digital Story Telling Project-An Exploration of Community Perceptions of Health Concerns in Urban Malawi.
Journal article
Nyirenda D. et al, (2022), Front Public Health, 10
pragmatic randomized controlled trial of standard care versus corticosteroids plus standard care for treatment of pneumonia in adults admitted to Kenyan hospitals (SONIA).
Journal article
Lucinde R. et al, (2022), Wellcome Open Res, 7
Recent publications
Bioethics and the value of disagreement.
Journal article
Parker MJ., (2025), J Med Ethics, 52, 7 - 13
dversarial cooperation: some reflections prompted by commentaries.
Journal article
Parker MJ., (2025), J Med Ethics, 52, 24 - 25
dolescent consent and Generation Alpha: bridging policy, practice and empirical evidence in healthcare.
Journal article
Fazel M. et al, (2025), Br J Psychiatry, 1 - 6
Moral craft: engaging with value pluralism in healthcare decision-making.
Journal article
Parker M., (2025), Monash Bioeth Rev, 43, 5 - 14
How should health researchers advance health equity?
Journal article
Cheah PY. and Parker M., (2025), Trends Microbiol, 33, 1260 - 1263

